Establishing the content validity of PROMIS Pediatric pain interference, fatigue, sleep disturbance, and sleep-related impairment measures in children with chronic kidney disease and Crohn’s disease

Journal of Patient-Reported Outcomes

Table 4 Sleep Disturbance, Sleep-Related Impairment, and Fatigue conceptual frameworks and number of children with chronic kidney disease for whom each facet was elicited^a

Facets	No. Children Reporting
Sleep Disturbance (problems sleeping)
Sleep onset	25
Sleep continuity	21
Dreams^b	2
Breathing^b	0
Parasomnias^b	0
Sleep quality	9
Sleep-related Impairment (impact of sleepiness on daytime functioning)
Daytime sleepiness	20
Sleep offset	24
Mood	23
Fun	2
Energy	19
Attention	21
General activities	20
Fatigue (impact of fatigue on)
Feelings of tiredness	25
Feelings of weakness	12
Sleeping	4
Sports/Exercise	15
Climbing stairs	1
Eating	5
Bathing/showering	0
Energy^b	11
Fun	6
Attention	22
Memory	4
Schoolwork	21
Friendships	18
Family	7
General activities	15
Performing tasks	10

^aThe conceptual frameworks were based on the original item pool for the PROMIS measure. An ^b is used to denote that the facet was dropped from the item bank after psychometric evaluation of item and scale performance. Facets are listed with symptoms first, then impacts on physical, mental, social, and general functioning