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Table 1 Participant Demographic and Clinical Characteristics

From: Establishing the content validity of PROMIS Pediatric pain interference, fatigue, sleep disturbance, and sleep-related impairment measures in children with chronic kidney disease and Crohn’s disease

CharacteristicCrohn’s disease
n (%)
Chronic Kidney Disease
n (%)
Total37 (100)26 (100)
Child’s age
 8–12 y6 (16)4 (15)
 13–17 y31 (84)22 (85)
Female17 (46)11 (42)
Race
 White36 (97)19 (73)
 Black0 (0)5 (19)
 Asian or Pacific Islander1 (3)1 (4)
 Other0 (0)1 (4)
Hispanic ethnicity0 (0)1 (4)
Medications used in past 12 months
 Oral corticosteroids6 (16)n/a
 Methotrexate13 (35) 
 Thiopurines3 (8) 
 Anti-Tumor Necrosis Factor Inhibitor28 (76) 
Crohn’s disease surgery past 12 months3 (8)n/a
Crohn’s disease related hospitalization past 12 months5 (14)n/a
Most Severe Physician Global Assessment of Crohn’s Disease Activity in past 12 months
 Inactive28 (76)n/a
 Mild8 (21) 
 Moderate/Severe1 (3) 
Glomerular kidney disease, n (%)n/a5 (19)
eGFR, n (%)
 15–30 mL/min/1.73 m2n/a3 (12)
 31–59 mL/min/1.73 m2 13 (50)
 60+ mL/min/1.73 m2 10 (38)
Last urine protein was negative, n (%)n/a11 (42)
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