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Table 1 Participant Demographic and Clinical Characteristics

From: Establishing the content validity of PROMIS Pediatric pain interference, fatigue, sleep disturbance, and sleep-related impairment measures in children with chronic kidney disease and Crohn’s disease

Characteristic

Crohn’s disease

n (%)

Chronic Kidney Disease

n (%)

Total

37 (100)

26 (100)

Child’s age

 8–12 y

6 (16)

4 (15)

 13–17 y

31 (84)

22 (85)

Female

17 (46)

11 (42)

Race

 White

36 (97)

19 (73)

 Black

0 (0)

5 (19)

 Asian or Pacific Islander

1 (3)

1 (4)

 Other

0 (0)

1 (4)

Hispanic ethnicity

0 (0)

1 (4)

Medications used in past 12 months

 Oral corticosteroids

6 (16)

n/a

 Methotrexate

13 (35)

 

 Thiopurines

3 (8)

 

 Anti-Tumor Necrosis Factor Inhibitor

28 (76)

 

Crohn’s disease surgery past 12 months

3 (8)

n/a

Crohn’s disease related hospitalization past 12 months

5 (14)

n/a

Most Severe Physician Global Assessment of Crohn’s Disease Activity in past 12 months

 Inactive

28 (76)

n/a

 Mild

8 (21)

 

 Moderate/Severe

1 (3)

 

Glomerular kidney disease, n (%)

n/a

5 (19)

eGFR, n (%)

 15–30 mL/min/1.73 m2

n/a

3 (12)

 31–59 mL/min/1.73 m2

 

13 (50)

 60+ mL/min/1.73 m2

 

10 (38)

Last urine protein was negative, n (%)

n/a

11 (42)