Skip to main content

Table 4 Impacts of hATTR Amyloidosis on patients’ functioning and well-being

From: Patient-reported burden of hereditary transthyretin amyloidosis on functioning and well-being

Impacta

N (%)

Physical Functioning

 Difficulty gripping/holding

11 (79%)

 Difficulty walking/standing

11 (79%)

 Difficulty bending/kneeling

5 (36%)

 Difficulty climbing stairs/ladders

5 (36%)

 Difficulty lifting heavy items

4 (29%)

 Difficulty exercising

4 (29%)

 Idleness

4 (29%)

Emotional Well-being

 Fear/anxiety

10 (71%)

 Frustration/disappointment

7 (50%)

 Sadness/depression

6 (43%)

 Anguish/despair

4 (29%)

Social Functioning

 Unable to participate in social activities

11 (79%)

 Misunderstood by others

4 (29%)

 Difficulty communicating

2 (12%)

 Self-isolation

2 (12%)

Work and Activities of Daily Living

 Early retirement

8 (57%)

 Absenteeism

8 (57%)

 Presenteeism

7 (50%)

 Difficulty dressing, bathing, using bathroom

9 (64%)

 Difficulty performing household chores

8 (57%)

 Difficulty driving

8 (57%)

 Difficulty eating

3 (21%)

  1. aBecause patients could report multiple impacts, frequency sums to > 100%