From: Patient-reported burden of hereditary transthyretin amyloidosis on functioning and well-being
Impacta | N (%) |
---|---|
Physical Functioning | |
Difficulty gripping/holding | 11 (79%) |
Difficulty walking/standing | 11 (79%) |
Difficulty bending/kneeling | 5 (36%) |
Difficulty climbing stairs/ladders | 5 (36%) |
Difficulty lifting heavy items | 4 (29%) |
Difficulty exercising | 4 (29%) |
Idleness | 4 (29%) |
Emotional Well-being | |
Fear/anxiety | 10 (71%) |
Frustration/disappointment | 7 (50%) |
Sadness/depression | 6 (43%) |
Anguish/despair | 4 (29%) |
Social Functioning | |
Unable to participate in social activities | 11 (79%) |
Misunderstood by others | 4 (29%) |
Difficulty communicating | 2 (12%) |
Self-isolation | 2 (12%) |
Work and Activities of Daily Living | |
Early retirement | 8 (57%) |
Absenteeism | 8 (57%) |
Presenteeism | 7 (50%) |
Difficulty dressing, bathing, using bathroom | 9 (64%) |
Difficulty performing household chores | 8 (57%) |
Difficulty driving | 8 (57%) |
Difficulty eating | 3 (21%) |