Development and evaluation of the Singapore Caregiver Quality of Life Scale - Dementia

Journal of Patient-Reported Outcomes

Table 1 Candidate items identified from review of dementia literature and pilot study

Source^a	Domain^b	Items
CGQOL	MW	I worry that someone would take advantage of my relative with dementia
CGQOL	MW	I worry that my relative with dementia would do something unsafe or harm himself or herself
CGQOL	MW	I am embarrassed by the behaviour of my relative with dementia
CGQOL	MW	I worry that I might be unable to take care of my relative with dementia in the future
ACQLI	MW	I feel like my relative with dementia has become a stranger to me
CGQOL	MW	I feel that my relative with dementia is a burden to me
PIXEL	EM	I have received useful information from healthcare professionals regarding my relative’s condition
CGQOL	EM	My faith helps me cope with the challenges of caregiving
CGQOL	EM	Taking care of my relative with dementia has brought us closer
Pilot study	MW	Societal attitude towards dementia makes my caregiving difficult
Pilot study	MW	I worry that my relative with dementia would fall and hurt himself or herself
Pilot study	EM	There is sufficient practical support in the community

^a ACQLI Alzheimer’s Carer’s Quality of Life Inventory [9], CGQOL Caregiver-targeted Quality of Life Measure [13], PIXEL Pixel Dementia Study Caregiver Quality of Life Scale [10]
^b Initial domain proposed for confirmatory factor analysis. MW Mental Well-being, EM Experience & Meaning