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Table 3 Demographics characteristics of patients with Phenylketonuria in the study, according to age group

From: Development of an inventory to assess perceived barriers related to PKU treatment

VariableTotal sample
n (%)
<  18 years of age (n = 11)
n (%)
≥ 18 years of age (n = 12)
n (%)
p
Sex1.000a
 Woman9 (39.1)4 (44.4)5 (55.6) 
 Man14 (60.9)7 (50.0)7 (50.0) 
Mothers’ level of education0.193 a
 4 years or less8 (34.8)2 (25.0)6 (75.0) 
 5 years or more15 (65.2)9 (60.0)6 (40.0) 
Fathers’ level of education (n = 19)§0.319a
 4 years or less6 (31.6)2 (33.3)4 (66.7) 
 5 years or more13 (68.4)9 (69.2)4 (30.8) 
PKU Classification¥0.414a
 Classical11 (47.8)4 (36.4)7 (63.6) 
 Mild12 (52.2)7 (58.3)5 (41.7) 
Beginning of treatment0.667a
  ≤ 3 months of age15 (65.2)8 (53.3)7 (46.7) 
  > 3 months of age8 (34.8)3 (37.5)5 (62.5) 
Current Phe Adherence(n = 22)£0.198a
 Good12 (54.5)8 (66.7)4 (33.3) 
 Poor10 (45.5)3 (30.0)7 (70.0) 
Current Median Phe Adherence (n = 22)£0.670a
Good10 (45.5)6 (60.0)4 (40.0) 
Poor12 (54.5)5 (41.7)7 (58.3) 
Current Phe level (n = 22)£
mg/dL Md [IQR]
8.8 [6–14.3]7.3 [5.9–8.9]13.2 [7.4–17.3]0.017b
Current Median Phe level (n = 22)£ mg/dL Md [IQR]8.3 [6.9–14.4]7.8 [5.6–8.3]13.2 [7.2–18.7]0.039b
  1. Notes: Phe Phenylalanine; Level of education = years of schooling. Current Phe level = Phe level collected prior to the study. Current Median Phe level = median of Phe level collected in the last 12 months prior to the study. § Four patients did not answer the question on the paternal educational achievement. ¥ One patient with Undefined PKU type was classified as Classical PKU. £ One patient had no information regarding recent adherence
  2. aFisher’s Exact test
  3. bMann-Whitney test