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Table 2 Change in scores between T0 (baseline) and T3 (90 days post-operative) of the measures

From: Translation and validation of two disease-specific patient-reported outcome measures (Bladder Cancer Index and FACT-Bl-Cys) in Dutch bladder cancer patients

Domains

No. of items per domain

T0 Valid population (n)a

T0 Mean (SD)

T0 Median (min-max)

T3 Valid population (n) a

T3 Mean (SD)

T3 Median (min-max)

T0-T3

Valid population (n)

Mean change (SD)

Min-max

SE

BCI

 Urinary domain

12

223

81.6 (18.2)

86.4 (7–100)

158

82.9 (17.6)

89.6 (25–100)

145

1.7 (21.5)

−55; 60

1.8

  Function

4

242

84.8 (25.1)

100.0 (0–100)

144

74.8 (33.2)

100.0 (0–100)

137

−11.0 (39.6)

−100; 100

3.4

  Bother

8

212

79.1 (20.7)

84.4 (11–100)

159

86.6 (13.0)

90.6 (47–100)

136

7.6 (20.4)

−41; 75

1.7

 Bowel domain

10

239

86.6 (14.4)

91.7 (34–100)

170

81.4 (16.6)

86.7 (18–100)

160

−5.4 (18.9)

−79; 58

1.5

  Function

4

234

86.3 (15.5)

91.8 (15–100)

163

83.8 (17.1)

87.5 (6–100)

152

−2.5 (20.3)

−79; 65

1.7

  Bother

6

239

86.7 (17.0)

95.8 (25–100)

196

80.0 (18.5)

83.3 (21–100)

159

−6.5 (21.3)

−79; 63

1.7

 Sexual domain

12

157

49.1 (19.6)

51.4 (9–85)

64

37.1 (17.7)

37.4 (3–75)

52

−15.6 (19.8)

− 62; 18

2.8

  Function

7

148

33.0 (19.3)

31.3 (0–82)

52

22.7 (16.6)

25.0 (0–61)

42

−14.2 (18.6)

−52; 18

2.9

  Bother

5

200

67.2 (30.7)

75.0 (0–100)

130

52.0 (31.0)

40.0 (0–100)

116

−13.5 (37.8)

−100; 100

3.5

FACT-Bl-Cys

 FACT-PWB

7

254

23.5 (4.6)

25.0 (7–28)

180

24.4 (3.6)

25.0 (8–28)

177

0.5 (4.5)

−16; 18

0.34

 FACT-SWB

7

255

22.0 (4.4)

22.2 (0–28)

177

21.3 (4.5)

22.0 (0–28)

175

−1.0 (4.6)

−24; 22

0.35

 FACT-EWB

6

253

17.8 (4.8)

19.0 (0–24)

173

20.4 (3.5)

21.0 (5–24)

167

2.8 (4.1)

−8; 23

0.32

 FACT-FWB

7

257

17.7 (5.8)

18.0 (0–28)

175

19.0 (4.9)

20.0 (6–28)

172

1.1 (5.0)

−14; 20

0.38

 Bl-Cys domain

15

257

40.7 (10.0)

41.8 (9–60)

175

43.9 (8.0)

45.0 (11–58)

172

2.5 (10.3)

−34; 28

0.79

 FACT-Bl-Cys total score

42

247

121.8 (22.3)

124.0 (38–168)

169

129.5 (18.0)

132.0 (47–163)

161

5.7 (19.0)

−55; 71

1.5

EQ-5D

 EQ-5D-5 L

5

245

0.80 (0.1)

0.85 (0–1)

176

0.84 (0.13)

0.88 (0–1)

167

0.03 (0.17)

−1; 1

0.1

 EQ-VAS

1

260

72.0 (20.5)

75.0 (0–100)

229

74.9 (19. 5)

80.0 (0–100)

229

−13.5 (36.9)

−96; 81

2.4

  1. aThe number of patients that completed enough items to calculate a total score, PWB Physical well-being domain, SWB Social/family well-being domain, EWB Emotional well-being domain, FWB Functional well-being domain, −FACT-Bl-Cys total score is only calculated when all items have been completed