Table 3 Interview Response Narrative Examples from Most Common Symptoms and Impact
Most Common Symptoms | Patient Response |
|---|---|
Fatigue (55%) | “It was terrible, I was just really tired all the time.” |
Seizures (50%) | “The seizure is what triggered everything—started everything.” |
Pain (50%) | “I had a really bad pain in my neck, back right side—just felt like there’s a lot of pressure on my neck.” |
Impact of Symptoms | |
Work (56%) | “Well, it affected my work life. At the time, I had the memory problems, I had the GI problem, and we were transitioning from a chairman in our department to a new one. And I needed to be on my toes. I needed to have a good memory. I needed to be there. And that was very, very difficult. So, it put a lot of stress on me because I knew I wasn’t able to be there.” |
Enjoyment of Life (44%) | “I was unable to play with my kids as much as usual. I’m usually a very vibrant person, and it took away from that. I wasn’t able to be myself.” |
Group Response Examples | |
Pre-surgery | “So, I had grand mal seizures—five of them before I was diagnosed correctly.” |
After-surgery | “I’ve gotten some lesser sensation on my left side, so sometimes I drag my left leg and sometimes I kind of walk into walls.” |
During treatment | “The chemo does you so bad. You’re so tired. You’re so fatigued. It just has you so tired.” |
After treatment | “And we knew something was going on, obviously, because I had some seizures before that.” |