Our family gives up things because of my child’s illness.
People in the neighborhood treat us specially because of my child’s illness
We see family and friends less because of the illness
I don’t have much time left over for other family members after caring for my child.
We have little desire to go out because of my child’s illness.
Because of the illness, we are not able to travel out of the city.
Sometimes we have to change plans about going out at the last minute because of my child’s state.
Sometimes I wonder whether my child should be treated “specially” or the same as a normal child.
I think about not having more children because of the illness.
Nobody understands the burden I carry.
Traveling to the hospital is a strain on me.
Sometimes I feel like we live on a roller coaster: in crisis when my child is acutely ill. OK when things are stable.
It is hard to find a reliable person to take care of my child.
I live from day to day and don’t plan for the future.
Fatigue is a problem for me because of my child’s illness.