Patient experience after kidney transplant: a conceptual framework of treatment burden

Journal of Patient-Reported Outcomes

Table 2 Saturation grid of themes and subthemes represented in qualitative interviews and focus groups

Themes and subthemes	Frequency of endorsement (%)
Themes and subthemes	Qualitative interviews (n = 27)	Focus group 1 (n = 7)	Focus group 2 (n = 9)
Theme 1: work patients must do to care for their health
--Learn about conditions and care	59	100	100
--Taking medications	82	100	100
--Medical appointments	100	100	100
--Monitoring health	52	100	100
--Health behaviors	89	100	100
--Medical equipment/devices	26	100	100
Theme 2: challenges/stressors that exacerbate felt burden		100	100
--Challenges with taking medication	100	100	100
--Interpersonal challenges	30	100	100
--Financial challenges	85	100	100
--Confusion about medical information	59	100	100
--Barriers to self-care	41	100	100
--Health care provider obstacles (individual provider)	41	100	100
--Health care provider obstacles (system issues)	67	100	100
--Transplant-specific challenges	100	100	100
Theme 3: impacts of burden		100	100
--Role/social activity limitations	89	100	100
--Physical/mental exhaustion of self-care	52	100	100