Table 5 Spontaneous vs probed impact expressions during the CE portion of the interviews
Symptom Reported, n (%) | Participants, N = 20 | |||
|---|---|---|---|---|
Spontaneous | Probed | Not Affected | Not Reported | |
Emotional functioning | ||||
Anxiety | 7 (35) | 2 (10) | 3 (15) | 8 (40) |
Embarrassment | 5 (25) | 1 (5) | 3 (15) | 11 (55) |
Depression | 4 (20) | 1 (5) | 3 (15) | 12 (60) |
Worry | 3 (15) | 5 (25) | 3 (15) | 9 (45) |
Anger | 2 (10) | 2 (10) | 3 (15) | 13 (65) |
Frustration | 2 (10) | 5 (25) | 3 (15) | 10 (50) |
Stress | 2 (10) | 4 (20) | 3 (15) | 11 (55) |
Guilt | 1 (5) | 3 (15) | 3 (15) | 13 (65) |
Othera | 1 (5) | – | – | 19 (95) |
Changes in daily performance | ||||
Work | 13 (65) | 2 (10) | 3 (15) | 2 (10) |
General functioning/daily routine | 4 (20) | 5 (25) | 3 (15) | 8 (40) |
Housework/chores | 4 (20) | 5 (25) | 3 (15) | 8 (40) |
Needs to pace self | 3 (15) | 11 (55) | 6 (30) | – |
Takes longer than usual to recover | 3 (15) | 14 (70) | 2 (10) | 1 (5) |
Takes longer than usual to complete tasks | 2 (10) | 13 (65) | 5 (25) | – |
Need to force self | 1 (5) | 12 (60) | 7 (35) | – |
Otherb | 1 (5) | – | 3 (15) | 16 (80) |
Limitations to lifestyle and activities | ||||
Changes to diet | 12 (60) | 3 (15) | 4 (20) | 1 (5) |
Changes to alcohol consumption | 7 (35) | 6 (30) | 6 (30) | 1 (5) |
Exercise/sports | 5 (25) | 5 (25) | 6 (30) | 4 (20) |
Travel | 5 (25) | 2 (10) | 6 (30) | 7 (35) |
Unable to plan things in advance | 4 (20) | 6 (30) | 9 (45) | 1 (5) |
Clothing restrictions | 2 (10) | – | – | 18 (90) |
Otherc | – | 1 (5) | – | 19 (95) |
Limitations to social functioning | ||||
Social activities limited | 8 (40) | 6 (30) | 6 (30) | – |
Family relations affected | 6 (30) | 4 (20) | 9 (45) | 1 (5) |
Friends relations affected | 5 (25) | 2 (10) | 8 (40) | 5 (25) |
Relationships with partner affected | 3 (15) | 3 (15) | 8 (40) | 6 (30) |
Workplace relations affected | 2 (10) | 2 (10) | 8 (40) | 8 (40) |
Otherd | 1 (5) | – | – | 19 (95) |
Less interest in sex | – | 5 (25) | 14 (70) | 1 (5) |
Sexual function issues | – | 3 (15) | 14 (70) | 3 (15) |
Sleep difficulties caused by itching or other symptoms | ||||
Difficulty staying asleep | 13 (65) | 3 (15) | 4 (20) | – |
Difficulty falling asleep | 7 (35) | – | 4 (20) | 9 (45) |
Needs to take naps | 3 (15) | 7 (35) | 10 (50) | – |
Reduced sleep quality | 3 (15) | 1 (5) | 4 (20) | 12 (60) |
Wakes up too early | 3 (15) | 2 (10) | 4 (20) | 11 (55) |
Goes to bed early | – | 10 (50) | 10 (50) | – |
Additional impacts | ||||
Scratching until skin is raw/infected | 11 (55) | 7 (35) | 2 (10) | – |
Decreased quality of life | 3 (15) | 12 (60) | 5 (25) | – |
Economic burden | 2 (10) | 6 (30) | 11 (55) | 1 (5) |
Treatment burden | 2 (10) | 1 (5) | – | 17 (85) |