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Table 4 Summary of impact concept code frequency totals by subdomain

From: Development and adaptation of patient-reported outcome measures for patients who experience itch associated with primary biliary cholangitis

PBC Impact Subdomains and Concepts Total Participant Symptom Expressions Within Concept, n (%)
N = 571
Transcripts Contributing to Concept Expressions, n (%)
N = 20
Changes in daily performance 119 (21) 18 (90)
Emotional functioning 103 (18) 19 (95)
Sleep difficulties caused by itching or other symptoms 98 (17) 18 (90)
Limitations to relationships and social functioning 87 (15) 16 (80)
Limitations to lifestyle and activities 84 (15) 20 (100)
Additional impactsa 80 (14) 19 (95)
  1. PBC, primary biliary cholangitis
  2. aDecreased quality of life, economic burden, scratching until skin is raw or infected, treatment burden, physical discomfort, and weight gain