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Table 2 Description of selected QOL assessment instruments

From: Design and introduction of a quality of life assessment and practice support system: perspectives from palliative care settings

Instrument Construct being measured Target population # of items and response scale(s) Domains measured
ESAS-r [39] Current symptoms People with life-limiting illness 11 items with a response scale ranging from 0 (no symptom) to 10 (worst possible) 9 items measure individual symptoms, 1 measures wellbeing, and 1 measures a self-identified problem
MQOL-R [49] Quality of life over the past two days People at all stages of a life-threatening illness (from diagnosis to cure or death) 14 items (+  1 global item) with a numerical response scale ranging from 0 to 10. Physical, Psychological, Existential, and Social
QOLLTI-F [50] Quality of life over the past two days Primary family caregiver of patients with life-threatening illness (but developed only with caregivers of cancer patients) 16 items (+  1 global item) with a numerical response scale ranging from 0 to 10. Environment, Patient Condition, Caregiver’s Own State, Outlook, Quality of Care, Relationships, and Financial Concerns
CANHELP-lite [52] (patient version) Satisfaction with end of life care during the past month Patients with life-limiting illness 20 items with a 5-point response scale ranging from 1 = not at all satisfied to 5 = completely satisfied Relationship with Doctors, Illness Management, Communication, Decision-Making, Your Well-being, and Overall Satisfaction
CANHELP-lite [52] (family caregiver version) Satisfaction with end of life care during the past month Family caregivers of patients with life-limiting illness 21 items with a 5-point response scale ranging from 1 = not at all satisfied to 5 = completely satisfied Relationship with Doctors, Characteristics of Doctors and Nurses, Illness Management, Communication and Decision-Making, Your Involvement, and Overall Satisfaction