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Table 1 Demographics of TSC Angiomyolipoma (AML) Patients

From: Burden of renal angiomyolipomas associated with tuberous sclerosis complex: results of a patient and caregiver survey

  TSC-AML Pediatric Patients (Age < = 18) (N = 31) TSC-AML Adults Patients (Age > 18) (N = 79) TSC-AML All Patients (N = 110) Total TSC Sample (N = 676)
Caregiver Respondents, n (%) 31 (100%) 28 (35%) 59 (54%) 275 (41%)
Mean Patient Age (SD) 10.6 (4.7) 36.4 (13.6) 29.1 (16.6) 29.8 (17.7)
 Median (min-max) 10.0 (2–18) 35.0 (19–73) 26.5 (2–73) 30.0 (0–83)
Health Insurance Status, n (%)
 Medicaida 12 (39%) 19 (24%) 31 (28%) 157 (23%)
 Medicareb 5 (16%) 10 (13%) 15 (14%) 109 (16%)
 Medicaid + Medicarec 11 (14%) 11 (10%) 102 (15%)
 Militaryd 1 (3%) 7 (9%) 8 (7%) 53 (8%)
 Commercial/private only 13 (42%) 24 (30%) 37 (34%) 223 (33%)
 Other/none 8 (10%) 8 (7%) 32 (5%)
  1. aIncludes Medicaid only or Medicaid plus private insurance
  2. bIncludes Medicare only or Medicare plus private insurance
  3. cIncludes Medicaid plus Medicare or Medicaid plus Medicare plus private insurance
  4. dIncludes VA/military/Tricare or Medicaid/Medicare/VA/military/Tricare
  5. AML Angiomyolipoma, SD standard deviation, TSC Tuberous sclerosis complex