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Journal of Patient-Reported Outcomes

Table 3 Caregiver-Observed Activities by ADL Category

From: Development of the Impact of Juvenile Metachromatic Leukodystrophy on Physical Activities scale

Caregiver-Observed Physical ADLs

 

Grooming

 

 1. Brush teeth

 

 2. Comb/brush hair

 

Bathing

 

 3. Take a bath/shower

 

Dressing

 

 4. Dress self

 

Eating/drinking

 

 5. Use a feeding tubea

 

 6. Eat

 

 7. Drink

 

Writing/drawing

 

 8. Use pencil/crayon

 

Sitting

 

 9. Sit upright

 

Toileting

 

 10. Get on/off toiletb

 

Mobility

 

 11. Use a wheelchaira

 

 12. Walk inside the homec

 

 13. Walk outside the homec

 

 14. Use stairs

 

Transfers

 

 15. Get in/out of bed

 

 16. Get in/out of a chair/wheelchair

 

 17. Get in/out of a vehicle

 
  1. ADL Activities of daily living, IMPA Impact of Juvenile Metachromatic Leukodystrophy on Physical Activities
  2. aItem removed from the final IMPA scale
  3. bAn additional item, “use the toilet,” was added to the final IMPA scale
  4. cItems relating to walking “inside” and “outside” the home were combined into a general item related to walking in the final IMPA scale
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