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  1. The Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) was developed by the National Cancer Institute as an adverse event assessment system to evaluate patients...

    Authors: Takashi Kawaguchi, Kanako Azuma, Motohiko Sano, Soan Kim, Yosuke Kawahara, Yoko Sano, Tomohide Shimodaira, Keiichiro Ishibashi, Tempei Miyaji, Ethan Basch and Takuhiro Yamaguchi
    Citation: Journal of Patient-Reported Outcomes 2018 2:2
  2. Children with Juvenile Idiopathic Arthritis (JIA) often have poor health-related quality of life (HRQOL) despite advances in treatment. Patient-centered research may shed light on how patient experiences of tr...

    Authors: Elissa R. Weitzman, Lauren E. Wisk, Parissa K. Salimian, Kara M. Magane, Fatma Dedeoglu, Aimee O. Hersh, Yukiko Kimura, Kenneth D. Mandl, Sarah Ringold and Marc Natter
    Citation: Journal of Patient-Reported Outcomes 2018 2:1
  3. Health-related quality of life instruments, both general and more disease specific, would ideally be included in the evaluation of outcome in paediatric orthopaedics. The aim of this study was to translate and...

    Authors: Bengt Herngren, Margaretha Stenmarker and Karin Enskär
    Citation: Journal of Patient-Reported Outcomes 2017 1:16
  4. The Food and Drug Administration patient-reported outcome (PRO) guidance provides standards for PRO development, but these standards bring scientific and logistical challenges which can result in a lengthy and...

    Authors: Louise Humphrey, Thomas Willgoss, Andrew Trigg, Stephanie Meysner, Mary Kane, Sally Dickinson and Helen Kitchen
    Citation: Journal of Patient-Reported Outcomes 2017 1:9
  5. Obstructive sleep apnea (OSA) is a chronic condition that can have a wide range of consequences for a patient’s health-related quality of life. Monitoring aspects of quality of life in clinical practice has th...

    Authors: Inger L. Abma, Maroeska Rovers, Marijke IJff, Bernard Hol, Gert P. Westert and Philip J. van der Wees
    Citation: Journal of Patient-Reported Outcomes 2017 1:14
  6. This study examined the content validity of the SF-36v2® Health Survey (SF-36v2) in patients with AL amyloidosis using qualitative interviews with physicians and patients. The study included three distinct pha...

    Authors: Michelle K. White, Martha S. Bayliss, Spencer D. Guthrie, Kimberly P. Raymond, Avery A. Rizio and Kristen L. McCausland
    Citation: Journal of Patient-Reported Outcomes 2017 1:13
  7. The US National Cancer Institute (NCI) has developed the Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) to capture patients’ self-reported symptomatic adver...

    Authors: Tempei Miyaji, Yukiko Iioka, Yujiro Kuroda, Daigo Yamamoto, Satoru Iwase, Yasushi Goto, Masahiro Tsuboi, Hiroki Odagiri, Yu Tsubota, Takashi Kawaguchi, Naoko Sakata, Ethan Basch and Takuhiro Yamaguchi
    Citation: Journal of Patient-Reported Outcomes 2017 1:8
  8. This study evaluated the responsiveness of several PROMIS patient-reported outcome measures in patients with hand and upper extremity disorders and provided comparisons with the qDASH instrument.

    Authors: Man Hung, Charles L. Saltzman, Tom Greene, Maren W. Voss, Jerry Bounsanga, Yushan Gu, Angela A. Wang, Douglas Hutchinson and Andrew R. Tyser
    Citation: Journal of Patient-Reported Outcomes 2017 1:12
  9. Pediatric neuromuscular illnesses often result in decreased health-related quality of life (HRQL), notably in physical functioning. Generic HRQL measures have been developed for use in general populations, but...

    Authors: Angie Mae Rodday, Robert J. Graham, Ruth Ann Weidner, Nan E. Rothrock, Darren A. Dewalt and Susan K. Parsons
    Citation: Journal of Patient-Reported Outcomes 2017 1:10
  10. This study aimed to evaluate the patient-reported outcome (PRO) content of ovarian cancer randomised-controlled trial (RCT) publications, describe PRO compliance, and explore potential relationships among thes...

    Authors: Rebecca Mercieca-Bebber, Michael Friedlander, Melanie Calvert, Martin Stockler, Derek Kyte, Peey-Sei Kok and Madeleine T. King
    Citation: Journal of Patient-Reported Outcomes 2017 1:5
  11. The lack of an appropriate retina-specific patient-reported outcome instrument restricts the understanding of the full impact of hereditary retinal diseases and other less common but potentially blinding acqui...

    Authors: Mallika Prem Senthil, Jyoti Khadka, Jagjit Singh Gilhotra, Sumu Simon and Konrad Pesudovs
    Citation: Journal of Patient-Reported Outcomes 2017 1:15
  12. The primary objective of this study was to evaluate the content validity of the Psoriasis Symptom Scale (PSS), with a specific focus on understanding of the content of the PRO measure by conducting one-on-one ...

    Authors: A. M. Rentz, A. M. Skalicky, K. Burslem, K. Becker, D. Kaschinski, D. Esser and D. A. Revicki
    Citation: Journal of Patient-Reported Outcomes 2017 1:4
  13. Eosinophilic esophagitis (EoE) is characterized by high levels of eosinophils in the esophageal mucosa. Patients with the disease present with a range of symptoms, including dysphagia (difficulty swallowing). ...

    Authors: Stacie Hudgens, Christopher Evans, Elaine Phillips and Malcolm Hill
    Citation: Journal of Patient-Reported Outcomes 2017 1:3
  14. Self-reports of health provide useful information about function and well-being that can improve communication between patients and clinicians. Global health items provide summary information that are predicti...

    Authors: Ron D. Hays, Benjamin D. Schalet, Karen L. Spritzer and David Cella
    Citation: Journal of Patient-Reported Outcomes 2017 1:2
  15. The aim was to examine the feasibility, acceptability and clinical utility of electronic symptom surveillance with clinician feedback using a subset of items drawn from the Patient-Reported Outcomes version of...

    Authors: Christina Baeksted, Helle Pappot, Aase Nissen, Niels Henrik Hjollund, Sandra A. Mitchell, Ethan Basch, Pernille Envold Bidstrup, Susanne Oksbjerg Dalton and Christoffer Johansen
    Citation: Journal of Patient-Reported Outcomes 2017 1:1

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