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Table 3 Education and training needs for integrating PROMs and PREMs

From: Factors affecting implementation of patient-reported outcome and experience measures in a pediatric health system

Roles

Education required

Outcome

Everyone

Importance of patient-reported measures and how they are used at the individual and system level to improve care. This should include concrete examples of how this type of data has been used in the past

Buy-in

Communicate the strategy for how PROMs and PREMs data will be used

Buy-in and trust

Basic understanding of the workflows around PROMs and PREMs collection and uploading to chart

Increase quality and rates of response

Clinical staff

Education about the PROMs and PREMs themselves (e.g., what constructs are being measured, what questions are being asked, which types of patients the PROM appropriate for, how to score and interpret scores)

PROMs used and interpreted as intended

How to introduce and convey importance of PROMs and PREMs to patients and families

Increase patient and family motivation to complete

How to use information from PROMs in care planning

Increase relevance for clinicians, motivation to collect PROMs

How to include PROM results in their conversations with patients and families

Increase patient and family motivation to complete

Support staff

Good understanding of PROMs workflows, i.e., how and when to collect PROMs (which PROMs for which patients) and how to upload to the patients’ chart and/or central database. They should be familiar with the PROMs so that they can answer questions from patients that may come up

Increase confidence of support staff, increase quality and rates of response

Managers

Training on how to access and interpret results

Appropriate interpretations of data

Analysts

How to score and interpret PROMs and PREMs

Appropriate interpretations in reporting

Clinical staff and/or implementation teams

How to choose appropriate measures

Measures relevant to the population are chosen

Patient and families

How to fill out measures

Increase quality and rates of response

Importance of patient-reported measures and how they will be used in their care and at the system level

Increase patient and family motivation to complete