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Table 4 Hemo-TEM item characteristics (total sample, n = 88)

From: Understanding treatment burden in hemophilia: development and validation of the Hemophilia Treatment Experience Measure (Hemo-TEM)

 

0-Not at all diff

1-A little diff

2-Somewhat diff

3-Very diff

4-Extremely diff

n

%

n

%

n

%

n

%

n

%

1a diff good place to inject

48

54.5%

25

28.4%

5

5.7%

6

6.8%

4

4.5%

1b diff put needle correctly

48

54.5%

23

26.1%

7

8.0%

5

5.7%

5

5.7%

1c diff find good place

32

36.4%

27

30.7%

17

19.3%

6

6.8%

6

6.8%

1d diff remembera

63

71.6%

22

25.0%

3

3.4%

0

0.0%

0

0.0%

1e diff exactly as instructeda

71

80.7%

13

14.8%

3

3.4%

1

1.1%

0

0.0%

 

0-Never

1-Rarely

2-Sometimes

3-Often

4-Always

n

%

n

%

n

%

n

%

n

%

2a often postpone on purpose

45

51.1%

36

40.9%

6

6.8%

0

0.0%

1

1.1%

2b often postpone accidenta

33

37.5%

42

47.7%

11

12.5%

1

1.1%

1

1.1%

 

0-Never

1-Rarely

2-Sometimes

3-Often

4-Always

n

%

n

%

n

%

n

%

n

%

3a often soreness

43

48.9%

30

34.1%

10

11.4%

4

4.5%

1

1.1%

3b often physical discomfort

53

60.2%

21

23.9%

9

10.2%

4

4.5%

1

1.1%

3c often pain

50

56.8%

22

25.0%

11

12.5%

4

4.5%

1

1.1%

3d often bruising

30

34.1%

39

44.3%

13

14.8%

4

4.5%

2

2.3%

3e often ruptured veins

40

45.5%

27

30.7%

15

17.0%

5

5.7%

1

1.1%

3f often probs scarring

41

46.6%

20

22.7%

17

19.3%

6

6.8%

4

4.5%

 

0-Not at all bothered

1-A little bothered

2-Somewhat bothered

3-Very bothered

4-Extremely bothered

n

%

n

%

n

%

n

%

n

%

4a bother number steps

40

45.5%

36

40.9%

9

10.2%

2

2.3%

1

1.1%

4b bother amt of time to prepare/give

40

45.5%

32

36.4%

13

14.8%

2

2.3%

1

1.1%

4c bother store meds

42

47.7%

28

31.8%

14

15.9%

2

2.3%

2

2.3%

4d bother carry meds

31

35.2%

30

34.1%

16

18.2%

8

9.1%

3

3.4%

4e bother often give treatment

34

38.6%

34

38.6%

14

15.9%

4

4.5%

2

2.3%

4f bother find time

43

48.9%

30

34.1%

10

11.4%

4

4.5%

1

1.1%

 

0-Not at all interfering

1-A little interfering

2-Somewhat interfering

3-Very interfering

4-Extremely interfering

n

%

n

%

n

%

n

%

n

%

5a interfere travel/vacation

28

31.8%

31

35.2%

12

13.6%

11

12.5%

6

6.8%

5b interfere social acts

37

42.0%

38

43.2%

8

9.1%

3

3.4%

2

2.3%

5c interfere daily acts

41

46.6%

32

36.4%

11

12.5%

2

2.3%

2

2.3%

5d interfere work/schoolb

31

41.9%

33

44.6%

9

12.2%

0

0.0%

1

1.4%

 

0-Never

1-Rarely

2-Sometimes

3-Often

4-Always

n

%

n

%

n

%

n

%

n

%

6a often anxious

47

53.4%

25

28.4%

13

14.8%

2

2.3%

1

1.1%

6b often frustrated

38

43.2%

32

36.4%

14

15.9%

3

3.4%

1

1.1%

6c often stressed

42

47.7%

28

31.8%

13

14.8%

3

3.4%

2

2.3%

6d often embarrasseda

55

62.5%

18

20.5%

7

8.0%

7

8.0%

1

1.1%

6e often worried infection

52

59.1%

17

19.3%

16

18.2%

2

2.3%

1

1.1%

6f often worried develop inhibitor

45

51.1%

22

25.0%

15

17.0%

4

4.5%

2

2.3%

6g often worried losing access vein

28

31.8%

23

26.1%

18

20.5%

13

14.8%

6

6.8%

  1. aItem dropped after item reduction
  2. bn=74 (n=12 reported “I do not currently work or go to school” and n=2 were missing data)