From: Parental self-efficacy managing a child’s medications and treatments: adaptation of a PROMIS measure
Patient characteristics | N (%) |
---|---|
Age | |
Mean (SD) | 9 (SD = 6) |
0–4 years | 9 (35) |
5–11 years | 7 (27) |
> 12 years | 10 (38) |
Biological sex | |
Male | 11 (42) |
Female | 14 (58) |
Payor | |
Public (medicaid) | 15 (58) |
Private (employer-based/commercial) | 11 (42) |
Conditions* | |
Cerebral palsy (spastic diplegia or quadriplegia) | 4 (15) |
Prematurity with multiorgan sequalae | 4 (15) |
Genetic/metabolic syndrome with multiorgan involvement | 4 (15) |
Cancer | 2 (8) |
Organ transplant | 2 (8) |
Complex congenital heart disease | 2 (8) |
Muscular dystrophy | 1 (4) |
Simple congenital heart disease | 1 (4) |
Autism | 1 (4) |
Food allergy | 1 (4) |
Juvenile idiopathic arthritis | 1 (4) |
Asthma | 1 (4) |
Attention deficit and hyperactivity disorder | 1 (4) |
Epilepsy | 1 (4) |
Dermatomyositis | 1 (4) |
Medical technology dependence (e.g. gastrostomy tube, ventilator, etc.) | |
Yes | 13 (50) |
No | 13 (50) |