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Table 3 Characteristics of interviewed parents’ children

From: Parental self-efficacy managing a child’s medications and treatments: adaptation of a PROMIS measure

Patient characteristics

N (%)

Age

 

Mean (SD)

9 (SD = 6)

0–4 years

9 (35)

5–11 years

7 (27)

 > 12 years

10 (38)

Biological sex

 

Male

11 (42)

Female

14 (58)

Payor

 

Public (medicaid)

15 (58)

Private (employer-based/commercial)

11 (42)

Conditions*

 

Cerebral palsy (spastic diplegia or quadriplegia)

4 (15)

Prematurity with multiorgan sequalae

4 (15)

Genetic/metabolic syndrome with multiorgan involvement

4 (15)

Cancer

2 (8)

Organ transplant

2 (8)

Complex congenital heart disease

2 (8)

Muscular dystrophy

1 (4)

Simple congenital heart disease

1 (4)

Autism

1 (4)

Food allergy

1 (4)

Juvenile idiopathic arthritis

1 (4)

Asthma

1 (4)

Attention deficit and hyperactivity disorder

1 (4)

Epilepsy

1 (4)

Dermatomyositis

1 (4)

Medical technology dependence (e.g. gastrostomy tube, ventilator, etc.)

 

Yes

13 (50)

No

13 (50)

  1. N = 26
  2. *Adds up to > 100% due to rounding and patient with more than one complex condition grouping