Table 2 Decisional regret assessment tools and reported results
First author | Publication year | Decisional regret assessment | Reported results | |||||
|---|---|---|---|---|---|---|---|---|
Tool used | Categorisation of scale | Method of administration | Timing (months) | Next of kin with DR [n/N, (%)] | Next of kin with strong DR [n, (%)] | DRS score | ||
Adult studies | ||||||||
Blumenthal-Barby | 2015 | DRS | Not reported | Face-to-Face or Phone | Not reported | 1/13 (8) | Not reported | 1.48 (0.78)a |
Gullick | 2009 | Open question | Not applicable | Face-to-Face | 6 and 12 | 1/14 (7) | Not applicable | Not applicable |
Lillie | 2014 | DRS-adapted | Unclear | 60 (not reported)a | 114/517 (22) | Not applicable | Not applicable | |
Sahgal | 2020 | DRS-adapted | Not reported | Face-to-Face or Mail | 0.4 | Not reported | Not reported | 12.5 (0–31)b |
Schulman-Green | 2020 | Structured interview | Not applicable | Face-to-Face | Not reported | Not reported | Not applicable | Not applicable |
Pediatric studies | ||||||||
Bethell | 2020 | DRS | 1–25 mild DR ≥ 26 moderate to strong DR | Online Survey | 15.5 (9.6–21.1)b | 154/340 (45) | 21 (6) | Not reported for the entire sample |
Carr | 2016 | DRS | 0 no DR ≥ 26 moderate DR | Face-to-Face | 1 to 3 | 55/94 (59) | 9 (10) | 8.78 (not reported)a |
Carr | 2017 | DRS | ≥ 26 moderate DR | Face-to-Face | 13 (0.05 to 111)a | 62/210 (30) | 16 (8) | 6.98 (13.74)a |
Chan | 2019 | Closed question | Not applicable | Face-to-Face | < 6 | 0/9 (0) | Not applicable | Not applicable |
Crombag | 2021 | Structured interview | Not applicable | Face-to-Face | 3 to 6 | 0/29 (0) | Not applicable | Not applicable |
Ellens | 2017 | DRS | 1–25 mild DR ≥ 26 moderate to strong DR | Not reported | 12 | 12/45 (27) | 3 (7) | Not applicable |
Ghidini | 2016 | DRS | 1–25 mild DR ≥ 26 moderate to strong DR | 60 (15–110)c | 297/323 (92) | 128 (40) | Not applicable | |
Hong | 2017 | DRS | 1–25 mild DR ≥ 26 moderate to strong DR | Face-to-Face | 10 to 16 | 28/64 (44) | 1 (2) | 0 (0–15)b |
Hong | 2016 | DRS | 1–25 mild DR ≥ 26 moderate to strong DR | Face-to-Face | 6 | 24/62 (39) | 2 (3) | 0 (0–5)b |
Javaid | 2020 | DRS | 1–25 mild DR ≥ 26 moderate to strong DR | Phone | Not reported | 27/50 (54) | 5 (10) | 17.4 (21.8)a |
Lonner | 2020 | Addition of a question on regret to the Patient Generated Index | ≥ 1 DR (continuous scale from 1 to 10) | Not reported | Preoperative (anticipated regret) | Not applicable | Not applicable | Not applicable |
Lorenzo | 2014 | DRS | 1–25 mild DR ≥ 26 moderate to strong DR | Face-to-Face | 12 | 58/116 (50) | 10 (9) | 8.9 (12.3)a |
Meenakshi-Sundaram | 2018 | DRS | 1–25 mild DR ≥ 26 moderate to strong DR | Not reported | 49 | Regret of patients and next of kin are combined | Not reported | 7 (12)a |
Neuhaus | 2020 | 7 items, 4 point-Likert scale | Likert scale from 1 "strongly disagree" to 4 "stongly agree" | Online Survey | Not reported | 97/219 (44) | Not reported | Not applicable |
O'Loughlin | 2013 | Closed question | Not applicable | Face-to-Face or Phone | 77 (43–89)b | 2/89 (2) | Not applicable | Not applicable |
Özveren | 2016 | Open question | Not applicable | Online Survey | 0 to 60 | 3/623 (0.5) | Not applicable | Not applicable |
Szymanski | 2017 | DRS | 1–25 mild DR ≥ 26 moderate to strong DR ≥ 51 strong DR ≥ 76 very strong DR | Online Survey | 53 (not reported)b | 8/39 (21) | 0 | 5 (not reported)a |
Van Engelen | 2021 | DRS | 1–25 mild DR ≥ 26 moderate to strong DR | Online Survey | 85.2 (28.8)a | 49/97 (51) | 11 (11) | 9.7 (12.6)a |