Reviewing next of kin regrets in surgical decision-making: cross-sectional analysis of systematically searched literature

Maillard, Julien; Beckmann, Tal S.; Tramèr, Martin R.; Elia, Nadia

doi:10.1186/s41687-023-00539-1

Journal of Patient-Reported Outcomes

Table 1 Included studies, demography and design

From: Reviewing next of kin regrets in surgical decision-making: cross-sectional analysis of systematically searched literature

First author	Publication year	Study design	Surgery (procedure)	Surgery (minor, moderate or major)	Next of kin			Quality assessment		References
First author	Publication year	Study design	Surgery (procedure)	Surgery (minor, moderate or major)	Number approached	Number analyzed	Relationship to linked-patient	Tool	Rating	References
Adult studies
Blumenthal-Barby	2015	Qualitative	Cardio-thoracic (left ventricular assist device (LVAD) placement)	Major	15	13	Family member	CASP	Poor	[24]
Gullick	2009	Qualitative	Cardio-thoracic (Lung volume reduction)	Moderate	14	14	Family member	CASP	Poor	[33]
Lillie	2014	Cross-sectional	Oncology (Mastectomy double mastectomy or lumpectomy)	Moderate	708	517	Family member	NIH	Fair	[15]
Sahgal	2020	Cross-sectional	Neurosurgery (Brain surgery)	Major	73	48	Not specified	NIH	Fair	[14]
Schulman-Green	2020	Qualitative	Oncology (Mastectomy Lumpectomy)	Moderate	20	20	Family member or friend who helped with treatment decision	CASP	Good	[16]
Pediatric studies
Bethell	2020	Cross-sectional	Urology (Hypospadia)	Minor	908	340	Parents	NIH	Good	[18]
Carr	2016	Prospective cohort	ENT (Tonsillectomy ± adenoidectomy)	Minor	102	94	Parents	NIH	Fair	[19]
Carr	2017	Cross-sectional	ENT (Ventilation tube insertion)	Minor	210	210	Parents or legal guardians	NIH	Fair	[23]
Chan	2019	Qualitative	Urology (Hypospadia)	Minor	17	9	Parents	CASP	Fair	[31]
Crombag	2021	Qualitative	Fetal surgery (Spina bifida)	Moderate	47	29	Parents	CASP	Fair	[35]
Ellens	2017	Prospective cohort	Urology (Genitoplastia)	Minor	51	45	Parents	NIH	Fair	[27]
Ghidini	2016	Cross-sectional	Urology (Hypospadia)	Minor	744	323	Parents	NIH	Fair	[26]
Hong	2017	Prospective cohort	ENT (Adenotonsillectomy, tonsillectomy or tympanoplasty with tube insertion)	Minor	126	64	Parents	NIH	Good	[21]
Hong	2016	Prospective cohort	ENT (Ear otoplasty)	Minor	65	62	Parents	NIH	Good	[20]
Javaid	2020	Cross-sectional	Urology (Hypospadia)	Minor	91	50	Parents	NIH	Fair	[30]
Lonner	2020	Cross-sectional	Orthopedic (Posterior spinal fusion)	Moderate	44	44	Parents	NIH	Fair	[36]
Lorenzo	2014	Prospective cohort	Urology (Hypospadia)	Minor	200	116	Parents	NIH	Fair	[22]
Meenakshi-Sundaram	2018	Cross-sectional	Digestive (Malone Antegrade Continence Enema)	Moderate	114	**	Family member	NIH	Fair	[28]
Neuhaus	2020	Cross-sectional	Dermatology (Congenital melanocytic nevi removal)	Minor	249	219	Parents	NIH	Fair	[17]
O'Loughlin	2013	Cross-sectional	Digestive (Fundoplication)	Moderate	122	89	Parents or Family member	NIH	Poor	[32]
Özveren	2016	Cross-sectional	Urology (Circoncision)	Minor	1235	623	Parents	NIH	Poor	[34]
Szymanski	2018	Cross-sectional	Urology (Genital restoration surgery)	Minor	106	39	Parents	NIH	Poor	[25]
Van Engelen	2021	Cross-sectional	Urology (Hypospadia)	Minor	261	97	Parents	NIH	Fair	[29]

ENT, ear-nose-throat; NIH, National Institute of Health—Quality Assessment Tool for Observational Cohort and Cross-Sectional Studies; CASP, Critical Appraisal Skills Programme Checklist Studies
^**Results of patients and next of kin are not separated

Back to article page