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Table 1 Patient and caregiver characteristics (n = 21)

From: “You need a team”: perspectives on interdisciplinary symptom management using patient-reported outcome measures in hemodialysis care—a qualitative study

Socio-demographic characteristic

N (%)

Gender

 

Man

13 (61.9)

Woman

8 (38.1)

Age (years)

Under 40

1 (4.8)

40–64

13 (61.9)

65 or older

7 (33.3)

Education

Less than Grade 12

1 (4.8)

High school diploma

7 (33.3)

College, trade, university

13 (61.9)

Employment

Retired

8 (38.1)

Disability

6 (28.6)

Not employed

5 (23.8)

Employed full or part time

2 (9.5)

Primary hemodialysis location (population)

 

Large urban (100,000 and over)

10 (47.6)

Medium urban (30,000–99,999)

4 (19.1)

Small urban (1000–29,999)

7 (33.3)

Clinical characteristic*

N (%)

Cause of kidney failure

Diabetes

6 (28.6)

High blood pressure

1 (4.8)

Glomerulonephritis

1 (4.8)

Other (e.g., sepsis, obstruction)

12 (57.0)

Unknown or unsure

1 (4.8)

Length of time with kidney disease (years)

Less than 5

7 (33.3)

5–9

6 (28.6)

10–20

5 (23.8)

More than 20

3 (14.3)

Length of time on hemodialysis (years)

Less than 1

6 (28.6)

1–2

5 (23.8)

3–5

3 (14.3)

More than 5

7 (33.3)

Experience with other kidney failure treatments

Yes

7 (33.3)

Peritoneal dialysis

4 (19.1)

Home hemodialysis

2 (9.5)

Transplant

1 (4.8)

No

14 (66.7)

PROM allocation

EQ-5D-5L

9 (42.9)

IPOS-Renal

8 (38.1)

Both

4 (19.0)

  1. IPOS, Integrated palliative care outcome scale; PROM, patient-reported outcome measure
  2. *The one participating caregiver reported clinical characteristics of her spouse who did not participate in the study