Table 1 Description of domains and items in our glaucoma-specific quality of life instrumenta
Domain (n = items) | Definition | Timeframe | Item stem | Response options | Example content |
|---|---|---|---|---|---|
Ocular comfort symptoms (n = 19) | Refers to any sensations or feelings in and around your eyes arising from glaucoma and glaucoma treatment | In the past 1 month… | How much were you bothered by…? How often did you experience…? How often did you feel like…? | Not at All (4) to A lot (1) None of the time (4) to All of the time (1) | Pain around eyes, itchy eyes, headache |
Activity limitation (n = 72) | Difficulties performing daily activities because of glaucoma or poor vision | None | How much difficulty do you have…? | None (5) to Unable to do because of my vision (1) | Reading (i.e. from a computer screen, street signs, bus numbers), cooking, finding things dropped on the floor, playing different sports |
Lighting (n = 15) | How glaucoma and associated vision problems affect ability to do things in different lighting conditions | None | How much difficulty do you have…? | None (5) to Unable to do because of my vision (1) | Seeing under fluorescent or indoor lighting, driving in the day/night, going down steps in dim lighting |
Mobility (n = 19) | The impact of glaucoma and associated vision loss in moving around the community independently | None | How much difficulty do you have…? | None (5) to Unable to do because of my vision (1) | Walking (i.e. around unfamiliar areas, on uneven ground), noticing things or people to the left or right, getting on or off public transport |
Psychosocial (n = 55) | Describes any concerns about or emotional reactions to having glaucoma and associated vision loss; as well as the impact of glaucoma on social life and personal relationships | In the past 1 month… | How concerned were you about…? How often did you feel…? | Not at all (5) to Extremely (1) None of the time (5) to All of the time (1) | Falling, your eyesight getting worse, being burden to your family Frustrated, depressed, helpless, socially isolated |
Glaucoma management (n = 28) | Difficulties and concerns surrounding glaucoma treatment, such as financial impact, difficulties in constantly administering eyedrops, etc | None | How difficult is…? How concerned are you about…? | Not at all (5) to Extremely (1) | Consistently administering the right amount of eyedrops, attending frequent appointments, the ongoing costs of glaucoma eyedrops |
Work (n = 13) | Work performance and financial impact of glaucoma | Currently… | How much difficulty do you have…? How concerned are you about…? | None (5) to Unable to do because of my vision (1) Not at all (5) to Extremely (1) | Keeping up at work, having limitations on the types of job |