Table 1 Study characteristics
From: Electronic patient-reported outcomes (e-PROMs) in palliative cancer care: a scoping review
N | Author, year and title | Study design | Sample | Country | Journal of publication |
|---|---|---|---|---|---|
1 | Cox et al. (2011) [59] The acceptability of e-technology to monitor and assess patient symptoms following palliative radiotherapy for lung cancer | Mixed-method design | 13 clinicians | UK | Palliative Medicine |
2 | Dy et al. (2011) [47] Tell Us™: A Web-Based Tool for Improving Communication Among patients, Families, and Providers in Hospice and Palliative Care Through Systematic Data Specification, Collection, and Use | Developmental project | HCPS of 3 hospices | USA | Journal of Pain Symptoms Management |
3 | Giesinger et al. (2011) [52] Quality of Life Trajectory in Patients with Advanced Cancer during the Last Year of Life | Longitudinal study | 85 oncology patients | Austria | Journal of Palliative Medicine |
4 | Suh et al. (2011) [48] Longitudinal patient-reported performance status assessment in the cancer clinic is feasible and prognostic | Longitudinal study | 86 patients with inoperable non-small cell lung cancer | USA | Journal of Oncology Practice |
5 | Hjermstad et al. (2012) [51] Computer-based symptom assessment is feasible in Patients with advanced cancer: Results from an international multicenter study, the EPCRC-CSA | Observational multicenter study | 1017 cancer patients | Norway, UK, Austria, Italy, Germany, Switzerland, Canada, Australia | Journal of Pain Symptoms Management |
6 | Kallen et al. (2012) [58] A technical solution to improving palliative and hospice care | Mixed-method study of usability | 27 participants divided into patients, caregivers and providers | USA | Supportive Care in Cancer |
7 | Stukenborg et al. (2013) [54] Cancer patient-reported outcomes assessment using wireless touch screen tablet computers | Feasibility study through interviews | 15 patients with solid tumors | USA | Quality of Life Research |
8 | LeBlanc et al. (2015) [49] What bothers lung cancer Patient the most? A prospective, longitudinal electronic patient-reported outcomes study in advanced non-small-cell lung cancer | Prospective longitudinal study | 97 NSCLC patients | USA | Supportive Care in Cancer |
9 | Tang et al. (2020) [55] Longitudinal study of symptom burden in outpatients with advanced cancers based on electronic Patient-Reported Outcome (ePRO) platform: a single institution, prospective study protocol | Protocol for a prospective, longitudinal single center cohort study | 185 oncology patients | China | BMJ Open |
10 | Karamanidou et al. (2020) [57] Development of an ePRO based Palliative Care Intervention for Cancer Patients: A Participatory Design Approach | Cross-sectional study employing qualitative methodology via focus group discussions | 9 patients with chronic lymphocytic leukemia or myelodysplastic syndromes and 5 HCPs | Greece | Digital Personalized Health and MEDICINE |
11 | Friis et al. (2021) [53] Patient-Reported Outcome Measures Used in Routine Care Predict for Survival at Disease Progression in Patients Con Advanced lung Cancer | Retrospective explorative study | 94 patients with lung cancer | Denmark | Clinical Lung Cancer |
12 | Bhargava et al. (2021) [50] RELIEF: A Digital Health Tool for the Remote Self-Reporting of Symptoms in Patients with Cancer to Address Palliative Care Needs and Minimize Emergency Department Visits | Pilot study | 20 patients in supportive palliative care | Canada | Current Oncology |
13 | Nipp et al. (2022) [54] Effect of a Symptom Monitoring Intervention for Patients Hospitalized With Advanced Cancer: A Randomized Clinical Trial | Nonblinded randomized clinical trial | 321 oncology patients | USA | JAMA Oncology |