Skip to main content

Table 1 Sample Demographic Characteristics (N = 968)

From: Siblings’ life aspirations in the context of Duchenne muscular dystrophy: a mixed-methods case-control study

  

Sibling (N <  = 349)

Comparison (N <  = 619) ¥

Cohen's d

Cramer's V

p-value

Variable

 

Mean

SD

Mean

SD

   

Age

 

18.2

5.8

19.1

7.6

− 0.14

 

0.06

Body mass index

 

24.2

5.4

23.6

6.0

0.10

 

0.20

Variable

 

#

%

#

%

   

Gender**

      

0.02

0.85

 

Male

168

48%

292

47%

   
 

Female

177

51%

324

52%

   
 

Other

1

0%

1

0%

   
 

Missing

0

 

0

    

Living alone*

Yes

2

1%

4

1%

 

0.01

0.91

Marital status (if age ≥ 18)

      

0.35

< 0.0005

 

Never married (or no response)

135

93%

136

62%

   
 

Married

7

5%

50

23%

   
 

Cohabitation

1

1%

26

12%

   
 

Separated

1

1%

4

2%

   
 

Divorced

1

1%

3

1%

   
 

Widowed

0

0%

0

0%

   

Ethnicity*

Hispanic or Latino

28

8%

121

20%

 

0.15

< 0.0005

Race (check all that apply)**

        
 

White

314

90%

456

74%

 

0.19

< 0.0005

 

Black or African American

21

6%

123

20%

 

0.19

< 0.0005

 

Other

6

2%

72

12%

 

0.18

< 0.0005

 

Missing

10

 

4

    

United States Region

      

0.15

0.01

 

East North Central

37

11%

93

15%

   
 

East South Central

36

10%

46

7%

   
 

Middle Atlantic

26

7%

77

12%

   
 

Mountain

25

7%

38

6%

   
 

New England

12

3%

23

4%

   
 

Pacific

65

19%

78

13%

   
 

South Atlantic

86

25%

127

21%

   
 

West North Central

16

5%

29

5%

   
 

West South Central

29

8%

71

11%

   
 

Non-Contiguous

0

0%

0

0%

   
 

missing

17

5%

37

6%

   

Difficulty paying bills (if age > 18)**

      

0.34

< 0.0005

 

Not at all difficult

103

77%

94

45%

   
 

Slightly difficult

17

13%

40

19%

   
 

Moderately difficult

8

6%

48

23%

   
 

Very difficult

2

2%

20

9%

   
 

Extremely difficult

3

2%

9

4%

   
 

Not applicable / missing

216

 

408

    

Employment status (if age > 18)**

      

0.25

< 0.0005

 

Employed

57

42%

130

61%

   
 

Unemployed

76

56%

71

33%

   
 

Retired

0

0%

8

4%

   
 

Disabled due to medical condition

2

1%

3

1%

   
 

Missing

214

 

407

    

Education (if age > 18)**

      

0.37

< 0.0005

 

Less than 12th grade

4

3%

6

3%

   
 

High school diploma

19

13%

60

27%

   
 

Some college

58

40%

50

23%

   
 

Technical (Vocational) degree

36

25%

17

8%

   
 

4-year University degree

24

17%

62

28%

   
 

Masters degree

2

1%

20

9%

   
 

Doctoral or professional degree

1

1%

5

2%

   
 

Missing

205

 

399

    

Had help completing survey*

Yes

90

26%

119

19%

 

0.08

0.02

Participant or a household member had COVID-19**

      

0.26

< 0.0005

 

Definitely or probably Yes

4

1%

113

19%

   
 

No

339

99%

495

81%

   
 

Missing

6

 

11

    
  1. Some sets of percentages may not add up to 100% due to rounding
  2. GED General Educational Development (i.e., high-school equivalency test), SD  Standard deviation
  3. *For these variables a non-response was counted as the absence of the characteristic in question
  4. **For these variables Cramer's V and p are based on non-missing results
  5. ¥ Comparison participants included only if age < 35