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Table 5 Number of people with PSC who took part in Stage 1 discussions according to PSC category and severity

From: Quality of life (QoL) for people with primary sclerosing cholangitis (PSC): a pragmatic strategy for identifying relevant QoL issues for rare disease

Category

N

Mild

Moderate

Severe

(1) PSC only

6

3

2

1

(2) PSC and inflammatory bowel disease (IBD)

9

2

7

0

(3) Assessed or waiting for a liver transplant

3

0

0

3

(4) Post-liver transplant

5

5

0

0

(5) Recurrent PSC post liver-transplant

3

0

3

0

(6) Experience of a PSC-related cancer

2

2

0

0

Total

28

12

12

4