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Table 5 Number of people with PSC who took part in Stage 1 discussions according to PSC category and severity

From: Quality of life (QoL) for people with primary sclerosing cholangitis (PSC): a pragmatic strategy for identifying relevant QoL issues for rare disease

Category N Mild Moderate Severe
(1) PSC only 6 3 2 1
(2) PSC and inflammatory bowel disease (IBD) 9 2 7 0
(3) Assessed or waiting for a liver transplant 3 0 0 3
(4) Post-liver transplant 5 5 0 0
(5) Recurrent PSC post liver-transplant 3 0 3 0
(6) Experience of a PSC-related cancer 2 2 0 0
Total 28 12 12 4