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Table 4 Number of issues by category for each step in the study

From: Quality of life (QoL) for people with primary sclerosing cholangitis (PSC): a pragmatic strategy for identifying relevant QoL issues for rare disease

Categories PSC support survey Literature review Combined (Stage 1 issues list) 60% Relevant
Overall QoL 4 3
Physical health 170 148 144 45
Emotional health 97 87 78 30
Cognitive health 11 19 7 4
Social functioning 85 68 46 18
Close relationships 37 33 22
Sex life 2 23
Diet 17
Body image 10
Information and uncertainty 117 35 30
Work, money, education 43 20 17 10
Experience of care and treatment 49 27 33 9
Spirituality 18
Total 611 441 396 168