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Table 4 Number of issues by category for each step in the study

From: Quality of life (QoL) for people with primary sclerosing cholangitis (PSC): a pragmatic strategy for identifying relevant QoL issues for rare disease

Categories

PSC support survey

Literature review

Combined (Stage 1 issues list)

60% Relevant

Overall QoL

4

3

Physical health

170

148

144

45

Emotional health

97

87

78

30

Cognitive health

11

19

7

4

Social functioning

85

68

46

18

Close relationships

37

33

22

Sex life

2

23

Diet

17

Body image

10

Information and uncertainty

117

35

30

Work, money, education

43

20

17

10

Experience of care and treatment

49

27

33

9

Spirituality

18

Total

611

441

396

168