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Table 2 Aims of discussions with PwPSC and clinicians, and data sources for assessing each aim

From: Quality of life (QoL) for people with primary sclerosing cholangitis (PSC): a pragmatic strategy for identifying relevant QoL issues for rare disease

Aim Data source
Relevance and importance of issues Quantitative responses on issues list
Qualitative responses regarding issues selected
Phrasing of issues Qualitative responses regarding phrasing and preferences
Qualitative responses regarding whether issues were appropriate (e.g. anything upsetting)
Breadth of coverage Qualitative responses regarding whether any issues were missing