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Table 4 Child (6–17 years) Participant Demographics and Characteristics

From: Qualitative research with patients and caregivers of patients with PIK3CA related overgrowth spectrum: content validity of clinical outcome assessments

 

Total population (N = 20)

Age, n (%)

6–7

8–9

10–12

13–14

15–17

4 (20.0)

2 (10.0)

4 (20.0)

5 (25.0)

5 (25.0)

Female, n (%)

14 (70.0)

Race, n (%)

Non-Hispanic/White

Hispanic/Latino

Black or African American

17 (85.0)

2 (10.0)

1 (5.0)

Geographical location, n (%)

US—North

US—South

US—East

US—West

2 (10.0)

2 (10.0)

7 (35.0)

9 (45.0)

Syndrome, n (%)

KT

CLOVES

MCAP/M-CM

FAVA

LM

6 (30.0)

4 (20.0)

3 (15.0)

5 (25.0)

2 (10.0)