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Table 3 Adult (> 18 years) Participant Demographics and Characteristics

From: Qualitative research with patients and caregivers of patients with PIK3CA related overgrowth spectrum: content validity of clinical outcome assessments

 

Total population (N = 10)

Age, n (%)

18–30

31 + 

3 (30.0)

7 (70.0)

Female, n (%)

7 (70.0)

Race, n (%)

Non-Hispanic/White

Hispanic/Latino

Did not wish to answer

8 (80.0)

1 (10.0)

1 (10.0)

Geographical Location, n (%)

US—North

US—South

US—East

US—West

2 (20.0)

3 (30.0)

3 (30.0)

2 (20.0)

Syndrome, n (%)

KT

CLOVES

KT & CLOVES

MCAP/M-CM

FAVA

LM

5 (50.0)

1 (10.0)

1 (10.0)

2 (20.0)

1 (10.0)

0 (0.0)