Concept of interest | COA by report | ||
---|---|---|---|
Adult self-report | Pediatric self-report | Observer-report | |
Global impression of symptom severity | Single item on the overall severity of PROSa | ||
Pain intensity | Brief pain inventory, items 2-6d | Brief Pain Inventory, items 2-6d | – |
Wong-Baker FACES | |||
Physical function | PROMIS-29 + 2 Profile v2.1 | PROMIS Pediatric-25 Profile v2.0 | PROMIS-Parent-Proxy-25 Profile v2.0 |
Fatigue | |||
Ability to participate in social roles and activities/Peer relationshipsb | |||
Pain interference | |||
Pain intensity | |||
Anxiety | |||
Depression | |||
Sleep disturbancec | PROMIS Pediatric Short Form v1.0 – Sleep Disturbance 4a | PROMIS Parent Proxy Short Form v1.0 – Sleep Disturbance 4a | |
Dyspnea | PROMIS Dyspnea Severity, three items from item bank | – |