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Table 2 Impact items used in the interviews

From: Qualitative study to characterize patient experience and relevance of patient-reported outcome measures for patients with metastatic synovial sarcoma

EORTC source

Concept

Question

EORTC QLQ-C30

Physical functioning

1. Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or suitcase?

2. Do you have any trouble taking a long walk?

3. Do you have any trouble taking a short walk outside of the house?

4. Do you need to stay in bed or a chair during the day?

Sleep

11. Have you had trouble sleeping?

ADL and work

6. Were you limited in doing either your work or other daily activities?

19. Did pain interfere with your daily activities?

Emotional

21. Did you feel tense?

22. Did you worry?

23. Did you feel irritable?

24. Did you feel depressed?

Social

26. Has your physical condition or medical treatment interfered with your family life?

27. Has your physical condition or medical treatment interfered with your social activities?

Appetite

13. Have you lacked appetite?

Hobbies

7. Were you limited in pursuing your hobbies or other leisure activities?

Financial

28. Has your physical condition or medical treatment caused you financial difficulties?

Cognition

20. Have you had difficulty concentrating on things, like reading a newspaper or watching television?

25. Have you had difficulty remembering things?

Personal care

5. Do you need help with eating, dressing, washing yourself or using the toilet?

  1. ADL, activities of daily living; EORTC QLQ-C30, European Organization for Research and Treatment of Cancer Quality of Life Questionnaire Core 30