Skip to main content

Table 1 Symptom items used in the interviews

From: Qualitative study to characterize patient experience and relevance of patient-reported outcome measures for patients with metastatic synovial sarcoma

EORTC source

Concept

Question

EORTC IL31 Items (from EORTC-QLQ-CIPN20)

Nerve/shooting/burning pain

1. Did you have shooting or burning pain in your fingers or hands?

2. Did you have shooting or burning pain in your toes or feet?

EORTC IL31 Items (from EORTC-QLQ-LC13)

Coughing

3. How much did you cough?

Coughing up blood

4. Did you cough up blood?

Shortness of breath

5. Were you short of breath when rested?

6. Were you short of breath when you walked?

7. Were you short of breath when you climbed stairs?

Pain (chest, arms, shoulder)

8. Have you had pain in your chest?

9. Have you had pain in your arm or shoulder?

Pain

10. Have you had pain in other parts of your body?

EORTC QLQ-C30

Shortness of breath

8. Were you short of breath?

Pain

9. Have you had pain?

Fatigue

10. Did you need to rest?

18. Were you tired?

12. Have you felt weak?

Gastrointestinal symptoms

14. Have you felt nauseated?

16. Have you been constipated?

15. Have you vomited?

17. Have you had diarrhea?

  1. C30, Core 30; CIPN20, Chemotherapy-Induced Peripheral Neuropathy 20-item scale; EORTC, European Organization for Research and Treatment of Cancer; IL31, Item Library 31; LC13, Lung Cancer 13; QLQ, Quality of Life Questionnaire