Table 5 Characteristics of oldest child with Sanfilippo syndrome: interviews
Median | Range | |
|---|---|---|
Age (years) | 9 | (2–24) |
Count | % | |
Sex | ||
Male | 10 | 53% |
Female | 9 | 47% |
Sub-type | ||
A | 13 | 68% |
B | 5 | 26% |
C | 1 | 5% |
Staging | ||
Early/mid stage | 8 | 42% |
Later stage | 11 | 58% |
Participated in a clinical trial | 6 | 32% |