Skip to main content

Table 4 Interview participant demographics

From: Caregivers' assessment of meaningful and relevant clinical outcome assessments for Sanfilippo syndrome

  Median Range
Age (years) 38 (29–54)
  Count  
Countries   
 USA 19 13 states
  Count %
Marital Status   
 Married/partnered 17 89%
 Single 2 11%
Sex   
 Male 2 11%
 Female 17 89%
Relationship to child   
 Biological father 2 11%
 Biological mother 17 89%
Race   
 African America/Black 1 5%
 Asian 1 5%
 White 17 89%
Education   
 Did not finish HS 0 0%
 High school graduate 1 5%
 Associates degree 2 11%
 Some college 3 16%
 Bachelor’s degree 6 32%
 More than a bachelor’s degree 7 37%
Income   
 Less than $25,000 2 11%
 $25,000–$49,000 2 11%
 $50,000–$74,999 2 11%
 $75,000–$99,999 2 11%
 $100,000–$149,000 3 16%
 $150,000 or more 8 42%
  1. n = 19