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Table 4 Interview participant demographics

From: Caregivers' assessment of meaningful and relevant clinical outcome assessments for Sanfilippo syndrome

 

Median

Range

Age (years)

38

(29–54)

 

Count

 

Countries

  

 USA

19

13 states

 

Count

%

Marital Status

  

 Married/partnered

17

89%

 Single

2

11%

Sex

  

 Male

2

11%

 Female

17

89%

Relationship to child

  

 Biological father

2

11%

 Biological mother

17

89%

Race

  

 African America/Black

1

5%

 Asian

1

5%

 White

17

89%

Education

  

 Did not finish HS

0

0%

 High school graduate

1

5%

 Associates degree

2

11%

 Some college

3

16%

 Bachelor’s degree

6

32%

 More than a bachelor’s degree

7

37%

Income

  

 Less than $25,000

2

11%

 $25,000–$49,000

2

11%

 $50,000–$74,999

2

11%

 $75,000–$99,999

2

11%

 $100,000–$149,000

3

16%

 $150,000 or more

8

42%

  1. n = 19