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Table 2 Results of PPIE views of draft items for consideration for the EQ-HWB measure

From: The role of patient and public involvement and engagement (PPIE) within the development of the EQ Health and Wellbeing (EQ-HWB)

Item

Reject

Undecided

Include

Domain: activity

I enjoyed what I did (F)

  

I was able to do the things I value (F)

  

I could do the things I wanted to do (F)

  

I was able to do what I needed (F)

  

How well were you able to do your day to day activities (e.g. working, shopping, travelling) (D)

  

My personal needs were met (e.g. being washed, going to the toilet, getting dressed, having food when I needed) (F)

 

 

Given the help I had/received my self-care needs were met (e.g. being washed, going to the toilet, getting dressed, having food when I needed)

 

 

I was able to look after myself (F)

  

I was able to look after myself (e.g. being washed, going to the toilet, getting dressed, having food when I needed) (F)

  

I was able to get around inside my home with no difficulty (D)

  

I was able to get around outside with no difficulty (D)

  

Because of hearing and/or speech, how difficult did you find it to have a conversation (D)

 

 

How well can you hear (using hearing aids if you usually wear them) (D)

  

How well can you see (using your glasses or contact lenses if they are needed) (D)

 

 

I was able to do the things I wanted to do (S)

  

Domain: autonomy

I felt able to cope with my day to day life (F)

  

I felt unable to cope with my day to day life (F)

  

I felt overwhelmed by the problems or situation (F)

  

I felt in control of my daily life

  

I felt I had no control over my day to day life (F)

  

Domain: cognition

I found it hard to concentrate (F)

  

I found it hard to pay attention (F)

  

I had trouble thinking clearly (F)

  

I had trouble remembering (F)

  

I felt confused (F)

  

Domain: feelings and emotions

I felt happy (F)

  

I felt unhappy (F)

  

I felt sad (F)

  

I thought my life was not worth living (F)

  

I felt that I had nothing to look forward to (F)

  

I felt frightened (F)

 

 

I felt afraid (F)

  

I felt safe (F)

  

I felt unsafe (F)

  

I felt anxious (F)

  

I felt worried (F)

  

I felt calm (F)

 

 

I felt irritable (F)

  

I felt angry (F)

 

 

I felt frustrated (F)

  

I lost my temper easily (F)

 

 

I felt cheerful (F)

  

Domain: physical sensations

I had no physical pain (mild pain etc.) (S)

  

How often do you experience physical pain (F)

  

I had no physical discomfort (mild discomfort etc.) (S)

  

How often do you experience physical discomfort (F)

  

I felt exhausted (F)

  

I felt very tired (F)

  

I had problems with my sleep (F)

  

Domain: Relationships

I felt unsupported by people (F)

  

I had support when I needed it (F)

  

I got along well with people around me (F)

  

I felt lonely (F)

  

I felt there was nobody I was close to (F)

  

I felt I had no one to talk to (F)

  

I felt isolated (F)

 

 

I felt people avoided me (F)

 

 

I felt accepted by others (F)

 

 

I felt excluded (F)

  

I felt left out (F)

 

 

Domain: self-identity

I felt confident in myself (F)

  

I felt unsure about myself (F)

  

I felt good about myself (F)

  

I felt like a failure (F)

  

  1. F frequency response option, S severity response options