Table 1 Detail of each PPIE session
Session 1 | Session 2 | Session 3 | Session 4 | |
|---|---|---|---|---|
EQALY stage | ||||
Aim | Review of conceptual model to ensure validity | Discussion on sub-domain inclusion Item refinement and reduction | Item reduction Pre-testing of items | Selection of items for the measure Design of the measure |
Participants | 7 | 7 | 5 | 6 |
Methods | ||||
Preparation material sent in advance | ✓ | ✓ | ✓ | ✓ |
Background introduction and/or recap | ✓ | ✓ | ✓ | ✓ |
Tasks | ||||
Individual assessment | ✓ | |||
Paired assessment | ✓ | ✓ | ||
Group discussion | ✓ | ✓ | ✓ | ✓ |
Sorting task | ✓ | ✓ | ✓ | |
Outcomes | Agreement with proposed themes and subthemes | Suggestion of dropping items to take forward into next stage of the project | Advice on which items to keep/drop, wording of items | Advice on final selection of items, wording of items, order of items within the measure, instructions for completion, and overall layout |
Follow-up | ✓ | ✓ | ✓ | Shared in the meeting |
PPIE quotes | “The experience of PPI in the EQALY project was valuable to me. This was the first time I’d been involved in measure development. I was able to give my views on what constitutes well-being and quality of life for a patient living with comorbidities. That this study spanned health, public health & especially social care, was an added bonus—I had recently experienced social care as both patient & carer” “It was the range of PPI activities and equality of opportunity which impressed me greatly. There were four face to face meetings which were very interactive. Important outputs were envisaged. Achieving those outputs as the study progressed, turned out to be dynamic & fun” “I think the opportunity for reflection was a strong theme of what was offered to the PPIE members—there was a sense of it not being hurried—but it progressed in a very considered way” | |||