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Table 4 The patients’ experiences of 77 issues (main 56, additional list 19), n = 52

From: Health-related quality of life in patients with COVID-19; international development of a patient-reported outcome measure

Issue # in English

Have experienced n (%)

Start of experience before diagnosis/during active disease/after end of isolation

Duration of experience (weeks) mean ± SD

Main list 56 issues

Fever

46 (88)

39/7/0

1 ± 1

Fatigue

43 (83)

29/10/4

4 ± 4

Cough

43 (83)

30/10/3

2 ± 3

Physical weakness

40 (77)

20/16/3a

4 ± 4

Shortness of breath

36 (69)

16/19/1

3 ± 4

Malaise

35 (67)

22/10/3

4 ± 4

Physical function

34 (65)

15/16/3

6 ± 5

Loss of appetite

31 (60)

18/12/1

3 ± 4

Chills

31 (60)

25/6/0

.6 ± .5

Role function

30 (58)

11/17/2

5 ± 5

General muscle soreness or pain

29 (56)

21/7/1

4 ± 5

Social function

29 (56)

13/15/1

5 ± 5

Worries about infecting others

27 (52)

12/11/4

4 ± 5

Overall health and quality of life

26 (50)

7/14/3a

5 ± 5

Extensive sweating

26 (50)

15/9/1a

2 ± 2

Anxiety

25 (48)

7/14/4

4 ± 5

Drowsiness

25 (48)

11/12/2

4 ± 4

Diarrhoea

25 (48)

11/14/0

2 ± 4

Loss of taste

24 (46)

8/14/1a

3 ± 5

Headache

24 (46)

17/5/2

2 ± 3

Joint pain

23 (44)

14/8/1

3 ± 4

Cognitive function

22 (42)

3/14/5

5 ± 5

Worries about future outcome

22 (42)

3/12/7

5 ± 5

Chest congestion

22 (42)

7/11/3a

2 ± 3

Insomnia

22 (42)

4/14/4

3 ± 3

Back pain

21 (40)

13/8/0

2 ± 3

Sore throat

21 (40)

14/7/0

2 ± 3

Dizziness

20 (38)

7/10/3

2 ± 3

Expectoration

20 (38)

8/10/1a

3 ± 5

Loss of smell

19 (37)

6/12/0a

3 ± 4

General pain

17 (33)

13/2/2

3 ± 4

Chest discomfort

17 (33)

7/6/3a

3 ± 3

Distress

16 (31)

4/7/5

4 ± 4

Tension

16 (31)

3/9/4

5 ± 4

Nasal congestion

15 (29)

7/7/1

3 ± 5

Worries about being discriminated against society

14 (27)

1/8/5

6 ± 7

Nausea

14 (27)

6/8/0

1 ± 1

Heart palpitations

13 (25)

4/6/3

3 ± 4

Chest pain

13 (25)

2/8/3

3 ± 4

Sore eyes

13 (25)

4/8/1

4 ± 4

Gastrointestinal discomfort

13 (25)

6/7/0

4 ± 4

Muscle stiffness

12 (23)

6/4/2

2 ± 1

Depression

12 (23)

3/5/3a

6 ± 6

Worries about economic difficulties

12 (23)

1/4/7

8 ± 5

Agitation

11 (21)

3/7/1

3 ± 2

Confusion

10 (19)

2/6/2

2 ± 3

Runny nose

10 (19)

3/7/0

2 ± 1

Shame or guilt of infecting others

9 (17)

2/6/1

3 ± 3

Throat congestion

9 (17)

5/4/0

3 ± 4

Sneezing

9 (17)

6/3/0

3 ± 4

Vision problems

9 (17)

2/6/1

3 ± 4

Vomiting

8 (15)

0/8/0

1 ± 1

Abdominal pain

7 (13)

4/3/0

3 ± 5

Anger

6 (12)

2/4/0

4 ± 5

Panic crisis

4 (8)

1/2/1

4 ± 6

Hearing loss

4 (8)

0/2/1a

9 ± 5

Additional list, 19 issuesb

Sense of loneliness

15 (29)

na

na

Mucus or extensive amount of saliva in mouth

11 (21)

na

na

Worries about being isolated

10 (19)

na

na

Acid reflux

9 (17)

na

na

Inability to cope

9 (17)

na

na

Red eyes

6 (12)

na

na

Neuropathic pain

6 (12)

na

na

Worries about cold

6 (12)

na

na

Rash

6 (12)

na

na

Worries about being abandoned by family or friends or of being abandoned by professionals or society

6 (12)

na

na

Worries about lack of support from family or friends

5 (10)

na

na

Losing consciousness or fainting

5 (10)

na

na

Constipation

4 (8)

na

na

Indifference

4 (8)

na

 

Abdominal distention

4 (8)

na

na

Pruritus

4 (8)

na

na

Hemoptysis

3 (6)

na

na

Difficulties communicating with health personnel wearing personal protective equipment

2 (4)

na

na

Suicidal thoughts

2 (4)

na

na

  1. SD standard deviation
  2. aNumbers do not add up to 100% due to missing values
  3. bAdditional list, start and duration of experience not available (na)