Study | PROM | Generic or disease specific | Domains | Comments | |
---|---|---|---|---|---|
Delgado, 2015 | EQ-5D-3L | Generic | Mobility Self-care Usual activities Pain/discomfort Anxiety/depression | A visual analog scale that ranges from 0 (worst state) to 100 (perfect health) is used to determine patients’ perceived Health Related Quality of life | |
Kansas City Cardiomyopathy Questionnaire (KCCQ) | Disease specific | Physical Function Symptoms Symptom stability Social limitation Self-efficacy Quality of life | Two summary scores can be calculated: Overall summary score (OSS): includes the total symptom, physical function, social limitations and quality of life scores Clinical summary score (CSS): includes total symptom and physical function scores to correspond with NYHA Classification The scores are converted into a scale ranging from 0 (worst level) to 100 (highest level) | ||
Duke-UNC Functional Social Support Questionnaire | Generic | This eight-item PROM measures the strength of the person's social support network | Scoring ranges from 11 (lowest level of social support) to 55 (highest level) A score of ≥ 32 indicates a normal social support network | ||
Zarit Caregiver Burden Interview | Generic | This 22-item PROM measures the impact of the patient’s condition on caregivers’ life, stress, and burden | The closest relative or caregiver of each patient completed this PROM Scoring ranges from 0 (lowest burden) to 88 (highest burden) | ||
Farmer, 2013 and White-Williams, 2013 | Ferrans and Powers Quality of Life Index | Generic | Health and functioning Psychological/spiritual domain Social and economic domain Family | ||
Heart Transplant Symptom Checklist | Disease specific | The Heart Transplant Symptom Scale measures 92 symptoms related to heart disease and heart failure, transplantation, medication side effects, and complications commonly found in this population | |||
Heart Transplant Stressor Scale | Disease specific | Finding out about the need for a transplant Having end-stage heart disease Family worrying Illness symptoms Waiting for a donor | Uncertainty about the future No energy for leisure activities Constantly feeling worn out Less control over life Dependency on others | ||
Sickness Impact Profile | Generic | Sleep and rest Eating Work Home management Recreation and pastimes Ambulation | Mobility Body care and movement Social interaction Alertness behavior Emotional behavior Communication | The overall maximum score is 100% 0% represents a good health status without physical or behavioral changes due to illness 100% represents a poor health status or a major impact of illness on behaviour | |
Jalowiec Coping Scale | Generic | Confrontive (10 items) Evasive (13 items) Optimistic (9 items) Fatalistic (4 items) Emotive (5 items) Palliative (7 items) Supportive (5 items) Self-reliant (7) | Consists of 60 coping behaviors | ||
Heart transplant Social Support Index | Disease specific | 5 questions addressing emotional support 10 questions addressing tangible support | This PROM measures the structural aspects of the social support network, and satisfaction with support (emotional, tangible, and overall) | ||
Positive and Negative Affect Schedule | Generic | Fear Sadness Guilt Hostility Shyness | Fatigue Surprise Joviality Self-Assurance Attentiveness Serenity | ||
Harper, 1998 | The Millon Behavioral Health Inventory | Generic | 8 coping/adjustment styles associated with personality types 6 psychogenic attitude scales 3 psychosomatic correlates scales 3 prognostic indices scales | Consists of 60 coping behaviors | |
O’Brien, 1987 | Nottingham Health profile | Generic | 6 dimensions of social functioning: Energy Pain Emotional reactions Sleep Social isolation Physical mobility | 7 life areas affected Work Looking after the home Social life Home life Sex life Interests and hobbies Vacations |