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Table 3 Descriptive statistics of measures used to create caregiver-burden groups (N = 566)

From: Interplay of disability, caregiver impact, and out-of-pocket expenditures in Duchenne muscular dystrophy: a cohort study

Construct Measure DMD caregiver
Mean SD Min Max
DMD caregiver impact Practical impact 50 10 36 81
Symptom impact 50 10 24 67
Lifestyle impact 50 10 28 74
Social impact 50 10 28 73
Physical impact 50 10 34 77
Emotional impact 50 10 33 74
Financial impact 50 10 32 74
Positive emotionsa 50 10 15 64
PROMIS parent proxy measures of DMD child's disability Fatigue impact 50.6 9.5 34 73
Strength impact 50.5 9.5 35 68
Negative affect 50.0 9.6 32 76
Sleep-device symptoms 8.8 3.7 4 18
Cognitive functiona 50.5 9.4 22 63
Upper extremity functiona 50.3 9.6 34 66
Positive emotionsa 49.9 9.2 21 68
Mobilitya 31.9 13.6 13 65
Out-of-pocket costs   Mean SD Min Max
Count of expenditures 3.1 2.2 0 8
  Frequency %   
  Modified home entrance 380 67%   
Modified bathroom 303 54%   
Modified inside home doorways 278 49%   
Purchased handicap-accessible van 259 46%   
Modified bedroom 241 43%   
Modified kitchen 144 25%   
Installed elevator 81 14%   
Moved to or build new home 26 5%   
Installed ceiling lift 16 3%   
Purchased scooter 12 2%   
Other 4 1%   
  1. aHigher scores indicate better functioning; otherwise higher indicates worse