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Table 2 Descriptive statistics of care-recipients (n = 566)

From: Interplay of disability, caregiver impact, and out-of-pocket expenditures in Duchenne muscular dystrophy: a cohort study

Variable %
Index child: % male   100%   
  Mean SD Min Max
Age 13.5 6.7 2 42
  Frequency %   
 Age 2–7 133 23%   
 Age 8–12 131 23%   
 Age 13–17 133 23%   
 Age 18+  169 30%   
Years cared for by this caregiver 11.6 7.0 0 42
Number of people with DMD caring for 1.1 0.4 1 5
Total number of children 1.9 1.0 0 8
Number of children with DMD 1.1 0.3 0 3
Number of supports living in the home 2.1 0.8 0 3
Caregiver's relationship to DMD index person Frequency %   
 Parent 549 97%   
 Sibling 3 1%   
 Other relative 9 2%   
 Paid caregiver 0 0%   
 Other 5 1%   
  Mean SD Min Max
Comorbidities, out of 11 presented specific comorbiditiesa 1.6 1.8 0 9
  Frequency %   
 Anxiety 204 36%   
 Asthma 45 8%   
 Attention deficit 91 16%   
 Autism spectrum disorder 45 8%   
 Depression 74 13%   
 Diabetes 11 2%   
 Epilepsy 17 3%   
 Overweight 96 17%   
 Learning disabilities 130 23%   
 Scoliosis 85 15%   
 Sleep disorder 96 17%   
  1. aA non-response was counted as the absence of the comorbidity in question