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Table 2 Descriptive statistics of care-recipients (n = 566)

From: Interplay of disability, caregiver impact, and out-of-pocket expenditures in Duchenne muscular dystrophy: a cohort study

Variable

%

Index child: % male

 

100%

  
 

Mean

SD

Min

Max

Age

13.5

6.7

2

42

 

Frequency

%

  

 Age 2–7

133

23%

  

 Age 8–12

131

23%

  

 Age 13–17

133

23%

  

 Age 18+ 

169

30%

  

Years cared for by this caregiver

11.6

7.0

0

42

Number of people with DMD caring for

1.1

0.4

1

5

Total number of children

1.9

1.0

0

8

Number of children with DMD

1.1

0.3

0

3

Number of supports living in the home

2.1

0.8

0

3

Caregiver's relationship to DMD index person

Frequency

%

  

 Parent

549

97%

  

 Sibling

3

1%

  

 Other relative

9

2%

  

 Paid caregiver

0

0%

  

 Other

5

1%

  
 

Mean

SD

Min

Max

Comorbidities, out of 11 presented specific comorbiditiesa

1.6

1.8

0

9

 

Frequency

%

  

 Anxiety

204

36%

  

 Asthma

45

8%

  

 Attention deficit

91

16%

  

 Autism spectrum disorder

45

8%

  

 Depression

74

13%

  

 Diabetes

11

2%

  

 Epilepsy

17

3%

  

 Overweight

96

17%

  

 Learning disabilities

130

23%

  

 Scoliosis

85

15%

  

 Sleep disorder

96

17%

  
  1. aA non-response was counted as the absence of the comorbidity in question