Variable | % | |||
---|---|---|---|---|
Index child: % male | Â | 100% | Â | Â |
 | Mean | SD | Min | Max |
Age | 13.5 | 6.7 | 2 | 42 |
 | Frequency | % |  |  |
 Age 2–7 | 133 | 23% |  |  |
 Age 8–12 | 131 | 23% |  |  |
 Age 13–17 | 133 | 23% |  |  |
 Age 18+  | 169 | 30% |  |  |
Years cared for by this caregiver | 11.6 | 7.0 | 0 | 42 |
Number of people with DMD caring for | 1.1 | 0.4 | 1 | 5 |
Total number of children | 1.9 | 1.0 | 0 | 8 |
Number of children with DMD | 1.1 | 0.3 | 0 | 3 |
Number of supports living in the home | 2.1 | 0.8 | 0 | 3 |
Caregiver's relationship to DMD index person | Frequency | % | Â | Â |
 Parent | 549 | 97% |  |  |
 Sibling | 3 | 1% |  |  |
 Other relative | 9 | 2% |  |  |
 Paid caregiver | 0 | 0% |  |  |
 Other | 5 | 1% |  |  |
 | Mean | SD | Min | Max |
Comorbidities, out of 11 presented specific comorbiditiesa | 1.6 | 1.8 | 0 | 9 |
 | Frequency | % |  |  |
 Anxiety | 204 | 36% |  |  |
 Asthma | 45 | 8% |  |  |
 Attention deficit | 91 | 16% |  |  |
 Autism spectrum disorder | 45 | 8% |  |  |
 Depression | 74 | 13% |  |  |
 Diabetes | 11 | 2% |  |  |
 Epilepsy | 17 | 3% |  |  |
 Overweight | 96 | 17% |  |  |
 Learning disabilities | 130 | 23% |  |  |
 Scoliosis | 85 | 15% |  |  |
 Sleep disorder | 96 | 17% |  |  |