Skip to main content

Table 1 Descriptive statistics of caregivers (n = 566)

From: Interplay of disability, caregiver impact, and out-of-pocket expenditures in Duchenne muscular dystrophy: a cohort study

Variable

Mean

SD

Min

Max

Age

41.6

8.8

21

72

 

Frequency

%

  

Gender

 Male

140

25%

  

 Female

426

75%

  

US region

 South Atlantic

103

18%

  

 East North Central

70

12%

  

 Pacific

91

16%

  

 Middle Atlantic

63

11%

  

 East South Central

68

12%

  

 West South Central

45

8%

  

 Mountain

30

5%

  

 West North Central

28

5%

  

 New England

21

4%

  

 Non-contiguous

1

0%

  

 Missing

46

8%

  

Marital status

 Never married

31

5%

  

 Married

453

80%

  

 Cohabitation/domestic partner

40

7%

  

 Separated

11

2%

  

 Divorced

23

4%

  

 Widowed

5

1%

  

 Missing

3

1%

  

Race (check all that apply)

 Black

47

8%

  

 White

519

92%

  

 Other

21

4%

  

Hispanic ethnicity

 Yes

57

10%

  

 No

490

87%

  

 Missing

19

3%

  

Level of education

 Less than 12th grade

6

1%

  

 High school diploma

59

10%

  

 Technical (vocational) degree

66

12%

  

 Some college

92

16%

  

 2-year university degree

89

16%

  

 4-year university degree

171

30%

  

 Masters degree

53

9%

  

 Doctoral degree

5

1%

  

 Missing

25

4%

  

Recruitment source

 Rare patient voice

49

9%

  

 Patient advocacy groups

87

15%

  

 Word of mouth

428

76%

  

 Missing

2

0%

  

Comorbidities

Comorbidities, out of 15 presented specific comorbiditiesa

1.3

1.7

0

9

 

Frequency

%

  

 Arthritis

76

13%

  

 Asthma

50

9%

  

 Back pain

189

33%

  

 Cancer now or in the past

18

3%

  

 Depression

131

23%

  

 Diabetes

20

4%

  

 Heart disease

11

2%

  

 High blood pressure

53

9%

  

 Insomnia

117

21%

  

 Kidney disease

3

1%

  

 Liver disease

5

1%

  

 Lung disease

3

1%

  

 Stroke

3

1%

  

 Ulcer or stomach disease

18

3%

  

 Other

66

12%

  
 

Mean

SD

Min

Max

Body mass index

26.9

6.0

16.5

40.0

Smoking status

Frequency

%

  

 Never smoked

447

79%

  

 Used to smoke

58

10%

  

 Some days currently

23

4%

  

 Every day currently

35

6%

  

 Missing

3

1%

  

Work status

 Employed

323

57%

  

 Unemployed

202

36%

  

 Retired

10

2%

  

 Disabled due to medical condition

10

2%

  

 Missing

21

4%

  

Hours worked per week

Does not apply

242

43%

  

  < 20

15

3%

  

 20–29

41

7%

  

 30–39

75

13%

  

 40+ 

193

34%

  
  1. aA non-response was counted as the absence of the comorbidity in question