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Table 1 Descriptive statistics of caregivers (n = 566)

From: Interplay of disability, caregiver impact, and out-of-pocket expenditures in Duchenne muscular dystrophy: a cohort study

Variable Mean SD Min Max
Age 41.6 8.8 21 72
  Frequency %   
Gender
 Male 140 25%   
 Female 426 75%   
US region
 South Atlantic 103 18%   
 East North Central 70 12%   
 Pacific 91 16%   
 Middle Atlantic 63 11%   
 East South Central 68 12%   
 West South Central 45 8%   
 Mountain 30 5%   
 West North Central 28 5%   
 New England 21 4%   
 Non-contiguous 1 0%   
 Missing 46 8%   
Marital status
 Never married 31 5%   
 Married 453 80%   
 Cohabitation/domestic partner 40 7%   
 Separated 11 2%   
 Divorced 23 4%   
 Widowed 5 1%   
 Missing 3 1%   
Race (check all that apply)
 Black 47 8%   
 White 519 92%   
 Other 21 4%   
Hispanic ethnicity
 Yes 57 10%   
 No 490 87%   
 Missing 19 3%   
Level of education
 Less than 12th grade 6 1%   
 High school diploma 59 10%   
 Technical (vocational) degree 66 12%   
 Some college 92 16%   
 2-year university degree 89 16%   
 4-year university degree 171 30%   
 Masters degree 53 9%   
 Doctoral degree 5 1%   
 Missing 25 4%   
Recruitment source
 Rare patient voice 49 9%   
 Patient advocacy groups 87 15%   
 Word of mouth 428 76%   
 Missing 2 0%   
Comorbidities
Comorbidities, out of 15 presented specific comorbiditiesa 1.3 1.7 0 9
  Frequency %   
 Arthritis 76 13%   
 Asthma 50 9%   
 Back pain 189 33%   
 Cancer now or in the past 18 3%   
 Depression 131 23%   
 Diabetes 20 4%   
 Heart disease 11 2%   
 High blood pressure 53 9%   
 Insomnia 117 21%   
 Kidney disease 3 1%   
 Liver disease 5 1%   
 Lung disease 3 1%   
 Stroke 3 1%   
 Ulcer or stomach disease 18 3%   
 Other 66 12%   
  Mean SD Min Max
Body mass index 26.9 6.0 16.5 40.0
Smoking status Frequency %   
 Never smoked 447 79%   
 Used to smoke 58 10%   
 Some days currently 23 4%   
 Every day currently 35 6%   
 Missing 3 1%   
Work status
 Employed 323 57%   
 Unemployed 202 36%   
 Retired 10 2%   
 Disabled due to medical condition 10 2%   
 Missing 21 4%   
Hours worked per week
Does not apply 242 43%   
  < 20 15 3%   
 20–29 41 7%   
 30–39 75 13%   
 40+  193 34%   
  1. aA non-response was counted as the absence of the comorbidity in question