Table 3 Comments on modified pre-final IPOS-Dem sections from cognitive interviews
From: Integrated Palliative Outcome Scale for People with Dementia: easy language adaption and translation
Pre-Final IPOS-Dem | Findings |
|---|---|
You are caring for a person with dementia We would like you to tell us: How was the person with dementia doing during the last 7 days? What worried the person with dementia’s family or friends? Which problems did you or someone else encounter during nursing care and social care? Important: All questions always concern the last 7 days Please write clearly | ProInfirmis recommendations are well written and clear: ‘7 days’ instead of the words ‘last week’ is the better alternative |
Date today (day/month/year) | ‘Date today’ is clearer than just ‘date’ |
No appetite (don’t want to eat) | Clear; a lot of people with dementia have a poor appetite. The English term is not accurate in the Swiss context |
Problems with teeth | The change in the pre-final-version is clear |
Is tired or sleepy during the day | Sleepiness is more apparent than drowsiness; explanatory example is not needed |
Impaired mobility (trouble walking, cannot get up, falls) | Impaired mobility is apparent, especially in the context of kinesthetics |
Difficulty communicating (speaking or any kind of body language) | Addition in the brackets is straightforward and also necessary |
Can’t sleep (during the night) | Addition in the brackets is precise and also necessary |
Agitation | Discussion about the explanation in the brackets. However, it is not necessary for the Swiss context because of the serial trial intervention assessment (STI) |
Has she/he been feeling anxious or agitated? | Changes in the German version are apparent due to the usage of the STI |
Do you think she/he felt sad or unhappy? | Sad and unhappy are both necessary |
Has she/he been able to talk to others or get in touch in some way (team, family, residents)? | Addition with ‘positively’ is not necessary |
If there was a problem, were you able to do something to resolve it? (help with hearing aids, organise foot care or smooth food) | Practical problems are to be considered in the context of everyday life |