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Table 2 Demographic data of child with UCD (all interviews undertaken with carers)

From: The burden of pharmacological treatment on health-related quality of life in people with a urea cycle disorder: a qualitative study

Age range categoriesa

Mean age

Sex

Previous treatment

P1: Adult

P2: Primary school age

P3: Primary school age

P4: Primary school age

P5: Primary school age

P6: Pre-school age

P7: High school age

P8: Primary school age

P9: Adult

12.44 (range 3–36, SD = 10.26)

M = 7

F = 2

Sodium phenylbutyrate (NaPBA) = 5

Sodium benzoate (NaBZ) = 4

  1. aPre-school age = 3–4 years old; Primary school age = 5–11 years old; High school age = 11–16 years old; Adult ≥ 16 years old
  2. verbatim quotes from participants