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Table 3. Descriptive statistics of outcomes measured

From: Characterizing the quality-of-life impact of Duchenne muscular dystrophy on caregivers: a case-control investigation

Construct Measure DMD caregiver Comparison caregiver P from T-test Variance explained If p < .05
Generic QOL Mean SD Min Max Mean SD Min Max
  PROMIS-10, Physical 50.3 10.2 20 68 48.3 8.0 27 68 < 0.0005 0.01
  PROMIS-10, Mental 49.0 10.1 21 68 50.3 8.0 25 68 0.02 0.01
  NeuroQOL Positive Affect and Well-Being 53.4 6.3 30 68 55.1 6.8 26 68 < 0.0005 0.02
  Ryff Environmental Mastery 30.1 6.6 13 42 30.9 6.8 11 42 0.045 0.003
  Resilience 0.0 1.0 -6 5 0.0 1.0 -7 5 0.78  
  Life Stress Questionnare 35.8 13.5 18 78 35.9 14.2 18 90 0.85  
  Difficulty Paying Bills 2.2 1.1 1 5 1.9 1.1 1 5 < 0.0005 0.02
Indirect Costs   Mean SD Min Max       
  Count of accomodations 3.1 2.2 0 8 NA NA NA NA NA NA
   Frequency %         
  Modified home entrance 379 67%    NA NA NA NA NA NA
  Modified bathroom 300 53%    NA NA NA NA NA NA
  Modified inside home doorways 277 49%    NA NA NA NA NA NA
  Handicap-accessible van 255 45%    NA NA NA NA NA NA
  Modified bedroom 243 43%    NA NA NA NA NA NA
  Modified kitchen 142 25%    NA NA NA NA NA NA
  Installed elevator 79 14%    NA NA NA NA NA NA
  Other 68 12%    NA NA NA NA NA NA
   Mean SD Min Max Mean SD Min Max   
  Hours Missed from Work 4.6 8.7 0 65 3.4 7.6 0 48 0.04 0.01
  Occupational Complexity 3.2 1.3 1 5 3.6 1.2 1 5 < 0.0005 0.03
  Impact on Siblings 34.8 12.4 9 62 NA NA NA NA NA NA
  Had to help with DMD caregiving 5.1 1.7 1 7 NA NA NA NA NA NA
  Had to give up time with friends 4.2 1.9 1 7 NA NA NA NA NA NA
  Had to give up sports or other extracurricular activities 3.9 2.1 1 7 NA NA NA NA NA NA
  Difficult to arrange their activities (e g , transportation) 3.9 1.7 1 7 NA NA NA NA NA NA
  Had to give up summer camp or travel 3.9 2.1 1 7 NA NA NA NA NA NA
  Didn't present them with opportunities because didn't want patient to suffer 3.4 2.0 1 7 NA NA NA NA NA NA
  Had to select a college close to home 3.2 2.1 1 7 NA NA NA NA NA NA
  Had to give up going to college 2.8 2.0 1 7 NA NA NA NA NA NA
  Plenty of money available for their activities or schooling 4.1 1.9 1 7 NA NA NA NA NA NA