Characterizing the quality-of-life impact of Duchenne muscular dystrophy on caregivers: a case-control investigation

Journal of Patient-Reported Outcomes

Table 2 Descriptive statistics of caregiving context

	DMD Care Recipients (n=566)				Comparison Care Recipient (n=594)				p from T- or Chi-Square Test	Variance explained If p < 0.05
Variable
		%				%
Index Child: % Male		100%				57%
	Mean	SD	Min	Max	Mean	SD	Min	Max
Age	13.5	6.7	2	42	14.1	10.9	0	55	0.22
Years Cared for by This Caregiver	11.6	7.0	0	42	NA	NA	NA	NA	NA
Number of People with DMD Caring for	1.1	0.4	1	5	NA	NA	NA	NA	NA
Total Number of Children	1.9	1.0	0	8	1.9	1.1	0	8	0.94
Number of Children with DMD	1.1	0.3	0	3	NA	NA	NA	NA	NA
Number of Supports Living in the Home	2.1	0.8	0	3	2.0	0.8	0	3	0.03	0.004
Caregiver's Relationship to DMD Index Person	Frequency	%
Parent	549	97%			NA	NA
Sibling	3	1%			NA	NA
Other Relative	9	2%			NA	NA
Paid Caregiver	0	0%			NA	NA
Other	5	1%			NA	NA
	Mean	SD	Min	Max	Mean	SD	Min	Max
Comorbidities, out of 11 presented	1.6	1.8	0	9	0.6	1.2	0	11	< 0.0005	0.09
Specific Comorbidities*	Frequency	%			Frequency	%
Anxiety	204	36%			77	13%			< 0.0005	0.07
Asthma	45	8%			71	12%			0.06
Attention Deficit	91	16%			36	6%			< 0.0005	0.02
Autism Spectrum Disorder	45	8%			12	2%			< 0.0005	0.02
Depression	74	13%			48	8%			0.004	0.01
Diabetes	11	2%			24	4%			0.29
Epilepsy	17	3%			6	1%			0.008	0.01
Overweight	96	17%			48	8%			< 0.0005	0.02
Learning disabilities	130	23%			24	4%			< 0.0005	0.08
Scoliosis	85	15%			12	2%			< 0.0005	0.06
Sleep disorder	96	17%			30	5%			< 0.0005	0.04