Skip to main content

Table 2 Descriptive statistics of caregiving context

From: Characterizing the quality-of-life impact of Duchenne muscular dystrophy on caregivers: a case-control investigation

  DMD Care Recipients (n=566)     Comparison Care Recipient (n=594)     p from T- or Chi-Square Test Variance explained If p < 0.05
Variable           
   %     %     
Index Child: % Male   100%     57%     
  Mean SD Min Max Mean SD Min Max   
Age 13.5 6.7 2 42 14.1 10.9 0 55 0.22  
Years Cared for by This Caregiver 11.6 7.0 0 42 NA NA NA NA NA  
Number of People with DMD Caring for 1.1 0.4 1 5 NA NA NA NA NA  
Total Number of Children 1.9 1.0 0 8 1.9 1.1 0 8 0.94  
Number of Children with DMD 1.1 0.3 0 3 NA NA NA NA NA  
Number of Supports Living in the Home 2.1 0.8 0 3 2.0 0.8 0 3 0.03 0.004
Caregiver's Relationship to DMD Index Person Frequency %         
 Parent 549 97%    NA NA     
 Sibling 3 1%    NA NA     
 Other Relative 9 2%    NA NA     
 Paid Caregiver 0 0%    NA NA     
 Other 5 1%    NA NA     
  Mean SD Min Max Mean SD Min Max   
Comorbidities, out of 11 presented 1.6 1.8 0 9 0.6 1.2 0 11 < 0.0005 0.09
Specific Comorbidities* Frequency %    Frequency %     
 Anxiety 204 36%    77 13%    < 0.0005 0.07
 Asthma 45 8%    71 12%    0.06  
 Attention Deficit 91 16%    36 6%    < 0.0005 0.02
 Autism Spectrum Disorder 45 8%    12 2%    < 0.0005 0.02
 Depression 74 13%    48 8%    0.004 0.01
 Diabetes 11 2%    24 4%    0.29  
 Epilepsy 17 3%    6 1%    0.008 0.01
 Overweight 96 17%    48 8%    < 0.0005 0.02
 Learning disabilities 130 23%    24 4%    < 0.0005 0.08
 Scoliosis 85 15%    12 2%    < 0.0005 0.06
 Sleep disorder 96 17%    30 5%    < 0.0005 0.04
  1. *A non-response was counted as the absence of the comorbidity in question