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Table 4 Relevancy of items of the PNH-SQ

From: A novel patient-reported outcome instrument assessing the symptoms of paroxysmal nocturnal hemoglobinuria, the PNH-SQ

  Relevant Not relevant Maybe relevant Number of participants asked Percent relevant, %
Fatigue 15 0 0 15 100
Shortness of breath 8 1 4 13 62
Muscle weakness 9 3 1 13 69
Headache 8 4 0 12 67
Abdominal pain 10 2 0 12 83
Pain in back or legs 11 1 0 12 92
Chest discomfort 8 5 0 13 62
Sexual difficulties 9 0 2 11 82
Difficulty sleeping 6 1 4 11 55
Difficulty focusing 11 1 1 13 85
Difficulty thinking clearly 10 2 0 12 83
Difficulty swallowing 10 3 0 13 77
  1. PNH-SQ Paroxysmal Nocturnal Hemoglobinuria-Symptom Questionnaire