Skip to main content

Table 4 Relevancy of items of the PNH-SQ

From: A novel patient-reported outcome instrument assessing the symptoms of paroxysmal nocturnal hemoglobinuria, the PNH-SQ

 

Relevant

Not relevant

Maybe relevant

Number of participants asked

Percent relevant, %

Fatigue

15

0

0

15

100

Shortness of breath

8

1

4

13

62

Muscle weakness

9

3

1

13

69

Headache

8

4

0

12

67

Abdominal pain

10

2

0

12

83

Pain in back or legs

11

1

0

12

92

Chest discomfort

8

5

0

13

62

Sexual difficulties

9

0

2

11

82

Difficulty sleeping

6

1

4

11

55

Difficulty focusing

11

1

1

13

85

Difficulty thinking clearly

10

2

0

12

83

Difficulty swallowing

10

3

0

13

77

  1. PNH-SQ Paroxysmal Nocturnal Hemoglobinuria-Symptom Questionnaire