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Table 2 Themes in interviews with IBD patients—grouped into ReadHy dimensions

From: Patient perspectives on digital patient reported outcomes in routine care of inflammatory bowel disease

Dimension

Benefit

Concern

Digital services that suit individual needs

Increased patient convenience

Not fit for smartphone

Unused potential of the system

Motivated to engage with digital services

Holistic care

Miss updates from hospital

Informing consultations

No control on next appointment—being lost in the system

Feel understood and supported by healthcare providers

Prioritising hospital resources

Fear of being forgotton in the system

Need for “life-line”

Feel safe and in control

Data is used in proper way

Is data used in proper way?

Understanding of health concepts and language

Learning from the PRO questions

Difficulties with free text field

Emotional distress

Compare with others

Compare with others

Increased anxiety

Self-monitoring and insight

 

Hard to assess symptoms

Ability to actively engage with digital services

 

Need to be able to use computers or smartphone