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Table 2 CEP generic PROMs, these are also available as ePROMs

From: The use of patient-reported measures in epilepsy care: the Calgary Comprehensive Epilepsy Program experience

PROMs

PROs

Target

Characteristics

Limitations

EQ-5D-5L

Self-perceived health state

Generic

Ranges from 1 to 100. 100 represents the best health state imaginable

High ceiling effect, low variability in effect sizes [31, 32]

GAD-7

Anxiety

Generic*

7-item scale [17]. Recommended cutoff point: > 7 [17]

 
  1. PROMs Patient-reported outcomes measures; ePROMs electronic patient-reported outcomes measures. PROs patient-reported outcomes; EQ-5D-5L: 5-level EuroQol 5-Dimension 5 instrument. GAD-7 7-item Generalized Anxiety Disorder scale
  2. *Recently validated in people with epilepsy[17, 22]