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Table 2 Qualitative categories for individualized items

From: A comparison of oncologist versus mental health provider attitudes towards standardized and tailored patient-reported outcomes

Category Definition Illustrative quote for those preferring standardized Illustrative quote for those preferring individualized Illustrative quote for those with no preference
Easier or simpler (n = 53 OP, n = 71 MHP) One version is simpler, easier to complete or shorter (less time consuming) n = 118
"Simpler and easier to compare"
n = 6
“Simpler for patient to understand”
n = 0
Too complicated (n = 20 OP, n = 22 MHP) Converse of "Easier or Simpler" where one of the options seems more complicated or difficult n = 42
"Version 2 is too complicated and results are difficult to interpret."
n = 0 n = 0
Variability (n = 39 OP, n = 30 MHP) Version 2 captures patient variability or what is important to the patient better. Also, Version 1 is not individualized enough N = 0 n = 69
"More variability"
n = 0
Confusion (n = 6 OP, n = 3 MHP) Indicates that person misunderstood description such as assuming Version 1 was short because Version 2 had 30 items. Also, if they say something like more variability in the survey means it is harder to interpret or can't compare Version 2 across patients or across time n = 4
"Less likely chance of patient fatigue of answering 30 questions and easy, efficient"
n = 4
“Too [m]uch variability in option 2. Hard to compare to prior scores if they choose different 30”
n = 1
“30 questions would be burdensome for some patients and won't complete so might use the shorter one but [question] validity with it”
Want to compare patients (n = 16 OP, n = 22 MHP) One version is preferred because it allows comparison of patients n = 36
"Being able to compare results across all patients"
n = 2
“Using version 2 seems to be favorable for comparison with different patients”
n = 0
Don't want to compare patients (n = 2 OP, n = 9 MHP) Do not want to compare patients or find that useful n = 0 n = 2
“Patient's needs and issues are unique and not comparable to other patients.”
n = 9
"Do not Compare scores between patients"
Need more data (n = 1 OP, n = 6 MHP) Need more information about the options to make a decision n = 0 n = 0 n = 7
"Would need to see the specific forms"
Equal (n = 14 OP, n = 22 MHP) No preference n = 0 n = 0 n = 36
"Both address the issues"
Other option not listed (n = 1 OP, n = 3 MHP) Prefer something else besides the two options listed n = 0 n = 0 n = 4
" We use computer-adaptive technology and the PROMIS validated tool "
Patients are more accurate (n = 2 OP, n = 4 MHP) Patients would be more accurate in reporting symptoms with one version n = 3
”I think the results would be more comparable and accurate”
n = 3
"Patient most likely to answer more accurate"
n = 0
Prefer clinical interview or don't see the value (n = 4 OP, n = 4 MHP) Do not prefer either because they prefer clinical judgment or interview n = 1
”focused care during visit”
n = 0 n = 7
"Takes too much time. Better to just ask patient."
Patients don't want to complete PROs (n = 1 OP, n = 1 MHP) Prefers neither because patients don't want to complete PROs in general n = 0 n = 0 n = 2
"Patients at our clinic do not take these PROs seriously and often get upset having to complete them"
More information (n = 21 OP, n = 13 MHP) One version would provide more or better information than the other n = 3
”it focuses on most relevant problems, toxicities, response to treatment”
n = 31
"I believe that more useful information would be obtained from version 2 although version 1 would also be helpful."
n = 0
Currently how it’s done (n = 2 OP, n = 3 MHP) This is how it has been done before or is the current standard of practice n = 5
"Because currently how it is done"
n = 0 n = 0
Better Results (n = 11 OP, n = 5 MHP) One version would provide better symptom assessment or be easier to interpret n = 8
"It will be easier to interpret"
n = 8
“If all patients get the same questions, then it is likely that they won't be asked about the information they are interested in giving feedback about.”
n = 0
Patients should not be the one's choosing (n = 0 OP, n = 4 MHP) Patients are not able to choose what is important to them or do not know what is most relevant to them n = 4
"I don't think patients choosing the applicable questions is a good idea, as they may not be able to interpret what applies best to them"
n = 0 n = 0
  1. OP oncology provider, MHP mental health provider. Standardardized Items was listed as Version 1 and Precision (Individualized) Items was listed as Version 2