Category | Definition | Illustrative quote for those preferring standardized | Illustrative quote for those preferring individualized | Illustrative quote for those with no preference |
---|---|---|---|---|
Easier or simpler (n = 53 OP, n = 71 MHP) | One version is simpler, easier to complete or shorter (less time consuming) | n = 118 "Simpler and easier to compare" | n = 6 “Simpler for patient to understand” | n = 0 |
Too complicated (n = 20 OP, n = 22 MHP) | Converse of "Easier or Simpler" where one of the options seems more complicated or difficult | n = 42 "Version 2 is too complicated and results are difficult to interpret." | n = 0 | n = 0 |
Variability (n = 39 OP, n = 30 MHP) | Version 2 captures patient variability or what is important to the patient better. Also, Version 1 is not individualized enough | N = 0 | n = 69 "More variability" | n = 0 |
Confusion (n = 6 OP, n = 3 MHP) | Indicates that person misunderstood description such as assuming Version 1 was short because Version 2 had 30 items. Also, if they say something like more variability in the survey means it is harder to interpret or can't compare Version 2 across patients or across time | n = 4 "Less likely chance of patient fatigue of answering 30 questions and easy, efficient" | n = 4 “Too [m]uch variability in option 2. Hard to compare to prior scores if they choose different 30” | n = 1 “30 questions would be burdensome for some patients and won't complete so might use the shorter one but [question] validity with it” |
Want to compare patients (n = 16 OP, n = 22 MHP) | One version is preferred because it allows comparison of patients | n = 36 "Being able to compare results across all patients" | n = 2 “Using version 2 seems to be favorable for comparison with different patients” | n = 0 |
Don't want to compare patients (n = 2 OP, n = 9 MHP) | Do not want to compare patients or find that useful | n = 0 | n = 2 “Patient's needs and issues are unique and not comparable to other patients.” | n = 9 "Do not Compare scores between patients" |
Need more data (n = 1 OP, n = 6 MHP) | Need more information about the options to make a decision | n = 0 | n = 0 | n = 7 "Would need to see the specific forms" |
Equal (n = 14 OP, n = 22 MHP) | No preference | n = 0 | n = 0 | n = 36 "Both address the issues" |
Other option not listed (n = 1 OP, n = 3 MHP) | Prefer something else besides the two options listed | n = 0 | n = 0 | n = 4 " We use computer-adaptive technology and the PROMIS validated tool " |
Patients are more accurate (n = 2 OP, n = 4 MHP) | Patients would be more accurate in reporting symptoms with one version | n = 3 ”I think the results would be more comparable and accurate” | n = 3 "Patient most likely to answer more accurate" | n = 0 |
Prefer clinical interview or don't see the value (n = 4 OP, n = 4 MHP) | Do not prefer either because they prefer clinical judgment or interview | n = 1 ”focused care during visit” | n = 0 | n = 7 "Takes too much time. Better to just ask patient." |
Patients don't want to complete PROs (n = 1 OP, n = 1 MHP) | Prefers neither because patients don't want to complete PROs in general | n = 0 | n = 0 | n = 2 "Patients at our clinic do not take these PROs seriously and often get upset having to complete them" |
More information (n = 21 OP, n = 13 MHP) | One version would provide more or better information than the other | n = 3 ”it focuses on most relevant problems, toxicities, response to treatment” | n = 31 "I believe that more useful information would be obtained from version 2 although version 1 would also be helpful." | n = 0 |
Currently how it’s done (n = 2 OP, n = 3 MHP) | This is how it has been done before or is the current standard of practice | n = 5 "Because currently how it is done" | n = 0 | n = 0 |
Better Results (n = 11 OP, n = 5 MHP) | One version would provide better symptom assessment or be easier to interpret | n = 8 "It will be easier to interpret" | n = 8 “If all patients get the same questions, then it is likely that they won't be asked about the information they are interested in giving feedback about.” | n = 0 |
Patients should not be the one's choosing (n = 0 OP, n = 4 MHP) | Patients are not able to choose what is important to them or do not know what is most relevant to them | n = 4 "I don't think patients choosing the applicable questions is a good idea, as they may not be able to interpret what applies best to them" | n = 0 | n = 0 |