From: Validation of a novel patient reported tool to assess the impact of treatment in erythropoietic protoporphyria: the EPP-QoL
Total sample visit 3–4
Stable only patients
Cronbach’s alpha
ICC
Pearson’s r
T test
EPP Symptoms
0.954
0.809
0.680
0.543
0.373
t = 1.91, n.s.
EPP Wellbeing
0.880
0.831
0.711
0.192
0.115
t = −1.56, n.s.